The Relations between Repetitive Behaviors and Family Accommodation among Children with Autism: A Mixed-Methods Study

Author:

Shiloh Gal1ORCID,Gal Eynat1,David Ayelet1ORCID,Kohn Elkana2ORCID,Hazan Ariela2,Stolar Orit3

Affiliation:

1. Department of Occupational Therapy, Faculty of Social Welfare & Health Sciences, University of Haifa, Haifa 3490002, Israel

2. Clinical Pharmacology and Toxicology, Shamir Medical Center (Assaf Harofeh), Zerifin 6093000, Israel

3. The Autism Center/ALUT, Shamir Medical Center (Assaf Harofeh), Zerifin 6093000, Israel

Abstract

Restricted and repetitive behaviors and interests (RRBI) are a significant component in diagnosing autism spectrum disorder (ASD). They often pose the main challenge in day-to-day functions for children with ASD and their families. Research addressing family accommodation behaviors (FAB) in the ASD population is scarce, and associations with the characteristics of the children’s behaviors are unclear. This sequential mixed-methods study assessed the correlation between RRBI and FAB within the ASD group to deepen the understanding of parents’ subjective experiences regarding their children’s RRBI. It included a quantitative phase with a follow-up qualitative study. A total of 29 parents of children with autism (5–13 yr) completed the study questionnaires; a total of 15 also were interviewed regarding their children’s RRBI and related FAB. We used the Repetitive Behavior Scale-Revised (RBS-R) to assess RRBI, and the Family Accommodation Scale (FAS-RRB) to assess FAS. In-depth interviews from phenomenological methodology were used in the qualitative phase. We found significant positive correlations between the RRBI and FAB overall and their subscores. Qualitative research supports these findings, adding descriptive examples of the accommodations families make to address the RRBI-related challenges. The results indicate relations between RRBI and FAB and the importance of practically addressing children with autism’s RRBI and their parents’ experiences. Both affect and are affected by the children’s behaviors.

Publisher

MDPI AG

Subject

Pediatrics, Perinatology and Child Health

Reference49 articles.

1. American Academy of Pediatrics (2012). Patient- and family-centered care and the pediatrician’s role. Pediatrics, 129, 394–404.

2. Gafni-Lachter, L.R. (2015). Better Together: Advancing Family Centered Care. [Ph.D. Thesis, Boston University].

3. American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders, American Psychiatric Association. [5th ed.].

4. Centers for Disease Control and Prevention (2023). Prevalence and Characteristics of Autism Spectrum Disorder among Children Aged 8 Years: Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020.

5. Gal, E., and Yirmiya, N. (2021). Repetitive and Restricted Behaviors and Interests in Autism Spectrum Disorders, Springer.

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