“We Want to Talk about Death, Dying and Grief and to Learn about End-of-Life Care”—Lessons Learned from a Multi-Center Mixed-Methods Study on Last Aid Courses for Kids and Teens

Author:

Bollig Georg1234,Gräf Kirsti45,Gruna Harry4,Drexler Daniel46,Pothmann Raymund47

Affiliation:

1. Department of Anesthesiology, Intensive Care, Palliative Medicine and Pain Therapy, Helios Klinikum, 24837 Schleswig, Germany

2. Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, 50924 Cologne, Germany

3. Last Aid Research Group International (LARGI), 24837 Schleswig, Germany

4. Letzte Hilfe Deutschland gGmbH, 24837 Schleswig, Germany

5. Pfeiffersche Stiftungen, 39114 Magdeburg, Germany

6. Department of Palliative Medicine, RoMed Klinikum, 83022 Rosenheim, Germany

7. Kinder PACT, 22297 Hamburg, Germany

Abstract

Background: Last Aid Courses (LAC) for adults have been established in 21 countries in Europe, Australia and America to improve the public discussion about death and dying and to empower people to participate in end-of-life care provision. In 2018, the first Last Aid Courses for kids and teens (LAC-KT) were introduced. The aim of the study was to explore the views and experiences of the course participants and Last Aid Course instructors on the LAC-KT. Methods: A mixed-methods approach was used. The views of the LAC-KT participants, aged 7 to 17 years, on the LAC-KT were collected using a questionnaire. In addition, the experiences of the Last Aid Course instructors were explored in focus group interviews. Results: The results show that 84% of the participants had experiences with death and dying and 91% found the LAC-KT helpful for everyone. The majority of the participants appreciate the opportunity to talk and learn about death, dying, grief and palliative care. Conclusions: The LAC-KT is feasible, very well accepted and a welcome opportunity for exchanging and obtaining information about dying, grief and palliative care. The findings of the study indicate that the LAC-KT should be offered to all interested children and teenagers and included in the school curriculum.

Publisher

MDPI AG

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