Abstract
(1) Background. This study assesses the quality of life in families with a member with an intellectual disability using the Family Adjustment and Adaptation Response framework. (2) Methods. The study included 515 Spanish participants whose family members with disabilities range in age from infancy to adulthood. We hypothesized that it is possible to predict parenting stress by paying attention to the meaning families give to themselves and their circumstances while controlling for the impact of other variables such as family capabilities and characteristics of the family member with disabilities. We used the Beach Center Family Quality of Life Scale and the section on Exceptional needs of medical and behavioral support from the Supports Intensity Scale, together with other potential predictors. The subscale on parental stress from the Parenting Stress Index–Short Form was utilized as a criterion measure. (3) Results. Hierarchical multiple regression analysis revealed that 49% of parental stress was predicted by dysfunctional interaction, difficult behaviors, low emotional wellbeing, poor family interaction, as well as kinship as parents, and the severity of both the medical needs and intellectual disability. (4) Conclusions. The stress experienced by those families is mostly predicted by the meaning they give to themselves and their circumstances. Implications of these findings for service delivery are discussed.
Subject
Health, Toxicology and Mutagenesis,Public Health, Environmental and Occupational Health
Reference86 articles.
1. Stress among Mothers of Children with Intellectual Disabilities in Urban India: Role of Gender and Maternal Coping
2. Coping Style as a Mediator of Stress Perception for Caregivers of Children with Developmental Disabilitieshttps://digitalcommons.wayne.edu/cgi/viewcontent.cgi?referer=&httpsredir=1&article=1202&context=oa_dissertations
3. Funzionamento della famiglia e sviluppo psicosociale dei fratelli di individui con disabilità intellettive. (spanish adaptation from the original: Family functioning and psychosocial adjustment of siblings of children with intellectual disabilities);Larcan;Psicol. Clin. Svilupp.,2011
4. Qualidade de Vida Familiar na Deficiência Intelectual: Revisão Sistemática de Estudos
5. The effects of a family support program including respite care on parenting stress and family quality of life perceived by primary caregivers of children with disabilities in Korea;Sung;Int. J. Spec. Educ.,2012
Cited by
16 articles.
订阅此论文施引文献
订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献