Safeguarding against Dementia in Aboriginal and Torres Strait Islander Communities through the Optimisation of Primary Health Care: A Project Protocol

Author:

Hornby-Turner Yvonne C.1ORCID,Russell Sarah G.1,Quigley Rachel1ORCID,Matthews Veronica2ORCID,Larkins Sarah1,Hayman Noel3,Lakhan Prabha3ORCID,Flicker Leon4ORCID,Smith Kate5,McKeown Dallas6,Cadet-James Diane1,Cass Alan7,Garvey Gail8ORCID,LoGiudice Dina9ORCID,Miller Gavin10,Strivens Edward110

Affiliation:

1. College of Medicine and Dentistry, James Cook University, Smithfield, QLD 4878, Australia

2. University Centre for Rural Health, University of Sydney, Lismore, NSW 2145, Australia

3. Southern Queensland Centre of Excellence in Aboriginal and Torres Strait Islander Primary Health Care, Metro South Hospital and Health Service, Inala, QLD 4077, Australia

4. Western Australian Centre for Health and Ageing, University of Western Australia, Crawley, WA 6009, Australia

5. Centre for Aboriginal Medical and Dental Health, University of Western Australia, Crawley, WA 6009, Australia

6. CRANAplus, Cairns, QLD 4870, Australia

7. Menzies School of Health Research, Charles Darwin University, Casuarina, NT 0810, Australia

8. School of Public Health, The University of Queensland, Herston, Brisbane, QLD 4006, Australia

9. Medicine, Dentistry and Health Sciences, University of Melbourne, Parkville, VIC 3050, Australia

10. Cairns and Hinterland Hospital and Health Service, Queensland Health, Cairns, QLD 4870, Australia

Abstract

This protocol describes the methodology and methods for a collaborative project with eight Aboriginal and Torres Strait Islander primary health care (PHC) organisations, across three Australian states and one territory, to increase clinical service performance and access to preventive health and health promotion services for preventing, identifying, treating, and managing dementia risk in Aboriginal and Torres Strait Islander communities. Aboriginal participatory action research (APAR) methodology will be the framework for this project, incorporating continuous quality improvement (CQI), informed by research yarning with stakeholder groups, comprising community members and PHC staff and service providers and data collected from the auditing of client health records and the mapping of existing clinical processes and health services at each partnering PHC organisation. The qualitative and quantitative data will be summarised and discussed with stakeholder groups. Priorities will be identified and broken down into tangible PHC organisation deliverable strategies and programs, which will be co-developed with stakeholder groups and implemented cyclically over 24 months using the Plan, Do, Study, Act model of change. Key project outcome measures include increased clinical service performance and availability of preventive health and health promotion services for safeguarding against dementia. Project implementation will be evaluated for quality and transparency from an Indigenous perspective using an appropriate appraisal tool. The project processes, impact, and sustainability will be evaluated using the RE-AIM framework. A dementia safeguarding framework and accompanying tool kit will be developed from this work to support Aboriginal and Torres Strait Islander PHC organisations to identify, implement, and evaluate dementia safeguarding practice and service improvements on a broader scale.

Funder

National Health and Medical Research Council

NHRMC

Publisher

MDPI AG

Subject

Biochemistry, Genetics and Molecular Biology (miscellaneous),Structural Biology,Biotechnology

Reference56 articles.

1. Australian Bureau of Statistics (2023, October 15). (2015–2017). Life Tables for Aboriginal and Torres Strait Islander Australians. ABS, Available online: https://www.abs.gov.au/statistics/people/aboriginal-and-torres-strait-islander-peoples/aboriginal-and-torres-strait-islander-life-expectancy-estimates/latest-release.

2. World Health Organization (2022). Ageing and Health, World Health Organization. Available online: https://www.who.int/news-room/fact-sheets/detail/ageing-and-health.

3. Australian Institute of Health and Welfare (2021). Dementia in Australia.

4. Demographic drivers of the growth of the number of Aboriginal and Torres Strait Islander people living with dementia, 2016–2051;Temple;Australas. J. Ageing,2022

5. Prevalence of dementia in urban and regional Aboriginal Australians;Radford;Alzheimer’s Dement.,2015

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