From Cultural Safety to Anti-Racism: Reflections on Addressing Inequities in Palliative Care

Author:

Bulle Seana1,Arya Amit2345,Dosani Naheed6789

Affiliation:

1. Department of Family & Community Medicine, University of Toronto, 500 University Avenue, Toronto, ON M5G 1V7, Canada

2. Palliative Care Physician, Freeman Centre for the Advancement of Palliative Care, North York General Hospital, 4001 Leslie Street Ontario, North York, ON M2K 1E1, Canada

3. Specialist Palliative Care in Long-Term Care Outreach Team, Kensington Health, 25 Brunswick Avenue, Toronto, ON M5S 2L9, Canada

4. Division of Palliative Care, Department of Family & Community Medicine, University of Toronto, 500 University Avenue, Toronto, ON M5G 1V7, Canada

5. Division of Palliative Care, Department of Family Medicine, McMaster University, 100 Main Street West, Hamilton, ON L8P 1H6, Canada

6. Department of Family & Community Medicine, St. Michael’s Hospital, Unity Health Toronto, 36 Queen Street East, Toronto, ON M5B 1W6, Canada

7. PEACH (Palliative Education And Care for the Homeless) Program, Inner City Health Associates, 145 Front Street East, Toronto, ON M5A 1E3, Canada

8. Kensington Hospice, Kensington Health, 45 Brunswick Avenue, Toronto, ON M5A 3M3, Canada

9. Canadian Partnership against Cancer, 145 King Street West, Toronto, ON M5H 1J8, Canada

Abstract

The purpose of palliative care is to ease the suffering of individuals with a serious and often life-limiting illness throughout the course of their disease by providing holistic care that considers the physical, spiritual, and psychosocial dimensions of health and well-being. Research shows that a palliative approach to care is cost-effective for the healthcare system and results in improved quality of life for patients and their loved ones. However, it is well-documented in the literature that structurally vulnerable populations have greater difficulty accessing equitable and culturally safe palliative care. Several domains are identified as contributing factors to the disparities seen in the literature, including systemic racism, cultural differences around death and suffering, and language barriers. Although Canada has had a national palliative care framework since 2018, ongoing issues of access and equity continue to disproportionately impact certain groups, including racially marginalized, immigrant, and low-income communities. In this commentary, successes and ongoing gaps in providing culturally safe and anti-racist palliative care are explored. In these proposed interventions, we advocate for a palliative approach to care that is grounded in equity, justice, and human rights.

Publisher

MDPI AG

Reference42 articles.

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2. McKenzie, K., Dube, S., and Petersen, S. (2021). Tracking COVID-19 through Race-Based Data, Wellesley Institute, Ontario Health. Available online: https://www.homelesshub.ca/resource/tracking-covid-19-through-race-based-data.

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5. Tan, A., and Dobie, A. (2023, May 20). Beyond Cultural Safety in Palliative Care: How to be an Anti-Racist Palliative Care Clinician. Speaking of Medicine and Health. PLOS. Available online: https://speakingofmedicine.plos.org/2021/08/03/beyond-cultural-safety-in-palliative-care-how-to-be-an-anti-racist-palliative-care-clinician/.

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