Parental Perceptions on the Importance of Nutrients for Children with Autism Spectrum Disorder (ASD) and the Coping Strategies: A Qualitative Study

Author:

Tan Woan Yin1ORCID,Hamzaid Nur Hana12ORCID,Ibrahim Norhayati3

Affiliation:

1. Dietetic Program, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia

2. Center of Rehabilitation and Special Needs Studies (iCaRehab), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia

3. Center of Aging and Wellness (H-Care), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur 50300, Malaysia

Abstract

Autism Spectrum Disorder (ASD) is a developmental disorder that comes with co-occurring eating behavior such as limited food varieties, selective food intake, and repetitive eating patterns, contributing to significant challenges for their parents. Many parents find mealtimes difficult and develop anxiety or stress about their child’s nutrition, health, and overall well-being. Hence, parents must equip themselves with the correct awareness and nutrition knowledge. An online open-ended semi-structured interview was conducted among fifteen parents from the community-rehabilitation program center to explore their understanding of nutrition’s importance and the possible coping strategies when facing challenges. The interview sessions were recorded, followed by three researchers’ coding processes. Data were then subjected to thematic analysis. The interview sessions suggested that the parents were aware of the autism trait eating behavior and had a general knowledge about nutrition. However, it was quite challenging when it came to preparation. Nevertheless, the parents are able to manage the challenges with unique kinds of coping strategies. In addition, a complete educational dietary intervention program including psychosocial aspects for parents is recommended for better effectiveness.

Funder

Research University

Publisher

MDPI AG

Subject

Food Science,Nutrition and Dietetics

Reference108 articles.

1. CDC (2022, February 15). What Is Autism Spectrum Disorder (ASD)? Centers for Disease Control and Prevention, Available online: https://www.cdc.gov/ncbddd/autism/facts.html.

2. Autism Speaks (2021, July 25). Autism and Health: A Special Report by Autism Speaks. Autism Speaks. Available online: https://www.autismspeaks.org/science-news/autism-and-health-special-report-autism-speaks.

3. CDC (2021, November 12). Treatment and Intervention Services for Autism Spectrum Disorder (ASD). Center for Disease Control and Prevention, Available online: https://www.cdc.gov/ncbddd/autism/treatment.html.

4. Prevalence and autism spectrum disorder among children age 8 years—Autism and developmental disabilities monitoring network;Maenner;MMWR Surveill Summ.,2020

5. Ministry of Health (2022, February 16). CPG Management of Autism Spectrum Disorder in Children and Adolescents. Putrajaya: Malaysian Health Technology Assessment Section (MaHTAS), Available online: http//www.moh.gov.myhttp//www.acadmed.org.myhttp//www.psychiatry-malaysia.org.

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