Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate

Author:

Jeawon Murveena123ORCID,Hase Bethany1,Miller Susanna1,Eng Janice2345,Bundon Andrea36,Chaudhury Habib7,Maffin Jocelyn8,Clarkson Ryan8,Wright Jenna8,Mortenson W. Ben1235ORCID

Affiliation:

1. Department of Occupational Sciences and Occupational Therapy, University of British Columbia, Vancouver, BC V6T 2B5, Canada

2. GF Strong Rehabilitation Centre, Vancouver, BC V5Z 2G9, Canada

3. International Collaboration on Repair Discoveries, Vancouver, BC V5Z 1M9, Canada

4. Department of Physical Therapy, University of British Columbia, Vancouver, BC V6T 1Z3, Canada

5. Centre for Aging SMART, Vancouver Coastal Health, Vancouver, BC V5Z 1M9, Canada

6. School of Kinesiology, University of British Columbia, Vancouver, BC V6T 1Z1, Canada

7. Department of Gerontology, Simon Fraser University, Vancouver, BC V6B 5K3, Canada

8. Spinal Cord Injury—British Columbia, Vancouver, BC V6P 5Y7, Canada

Abstract

(1) Purpose: To examine associations between subjective quality of life and other socio-demographic variables and to explore differences in experiences of people with different levels of quality of life (low, moderate, high). (2) Materials and methods: Semi-structured interviews and standardized measures of mobility, function, health-related quality-of-life, and quality-of-life were used to collect the data for this mixed-method study. (3) Results: Twenty-four participants were interviewed with an average age of 55 years and 54% were male. High quality of life, according to quantitative analysis, was strongly associated with being male, attending rehabilitation, and being married. The qualitative findings supported the quantitative findings and also revealed that people with a low quality of life felt the neighborhood-built environment was not supportive of people with incomplete spinal cord injury who can walk. Participants who reported a low/moderate quality of life reported feeling devalued by able-bodied people and that their mobility was getting worse over time. (4) Conclusion: Findings suggest that those with incomplete spinal cord injuries who can walk could benefit from improved quality of life by modifying their social support and neighborhood’s built environment. For instance, sensitivity training for the general population could help to reduce negative attitudes and misperceptions about invisible impairments and promote inclusion.

Funder

ICORD Seed Grant

Publisher

MDPI AG

Subject

General Engineering

Reference106 articles.

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2. (2023, February 27). Rick Hansen SCI Registry Community Report. Available online: https://praxisinstitute.org/wpcontent/uploads/2019/10/RHSCIR_CommunityReport_2017.pdf.

3. Spinal cord injury community survey: A national, comprehensive study to portray the lives of Canadians with spinal cord injury;Noreau;Top. Spinal Cord. Inj. Rehabil.,2014

4. (2023, February 27). Rick Hansen Spinal Cord Injury Registry—A Look at Traumatic Spinal Cord Injury in Canada in 2019. Available online: https://praxisinstitute.org/wpcontent/uploads/2021/02/RHSCIR-2019-Report_WEB.pdf.

5. Falls in individuals with incomplete spinal cord injury;Brotherton;Spinal Cord.,2007

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