Content and Face Validity of the Evaluation Tool of Health Information for Consumers (ETHIC): Getting Health Information Accessible to Patients and Citizens

Author:

Cocchi Simone1ORCID,Cipolat Mis Chiara2ORCID,Mazzocut Mauro3ORCID,Barbieri Irene4ORCID,Bassi Maria Chiara1ORCID,Cavuto Silvio5ORCID,Di Leo Silvia4ORCID,Miraglia Raineri Alessandra4ORCID,Cafaro Valentina4ORCID,

Affiliation:

1. Medical Library, Azienda USL—IRCCS di Reggio Emilia, 42123 Reggio Emilia, Italy

2. Biblioteca Scientifica e per Pazienti, Centro di Riferimento Oncologico di Aviano (CRO), IRCCS, 33081 Aviano, Italy

3. Biblioteca di Area Umanistica, Sistema Bibliotecario di Ateneo, Università Ca’ Foscari, 30123 Venice, Italy

4. Psycho-Oncology Unit, Azienda USL—IRCCS di Reggio Emilia, 42123 Reggio Emilia, Italy

5. Clinical Trials and Statistics Unit, SOC Infrastructure, Research and Statistics, Azienda USL—IRCCS di Reggio Emilia, 42123 Reggio Emilia, Italy

Abstract

Background: Health information concerns both individuals’ engagement and the way services and professionals provide information to facilitate consumers’ health decision making. Citizens’ and patients’ participation in the management of their own health is related to the availability of tools making health information accessible, thus promoting empowerment and making care more inclusive and fairer. A novel instrument was developed (Evaluation Tool of Health Information for Consumers—ETHIC) for assessing the formal quality of health information materials written in Italian language. This study reports ETHIC’s content and face validity. Methods: A convenience sample of 11 experts and 5 potential users was involved. The former were requested to evaluate relevance and exhaustiveness, the latter both readability and understandability of ETHIC. The Content Validity Index (CVI) was calculated for ETHIC’s sections and items; experts and potential users’ feedback were analyzed by the authors. Results: All sections and most items were evaluated as relevant. A new item was introduced. Potential users provided the researchers with comments that partly confirmed ETHIC’s clarity and understandability. Conclusions: Our findings strongly support the relevance of ETHIC’s sections and items. An updated version of the instrument matching exhaustivity, readability, and understandability criteria was obtained, which will be assessed for further steps of the validation process.

Funder

Italian Ministry of Health

Publisher

MDPI AG

Subject

Health Information Management,Health Informatics,Health Policy,Leadership and Management

Reference48 articles.

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