Cancer Patients’ Satisfaction with In-Home Palliative Care and Its Impact on Disease Symptoms

Author:

Valero-Cantero Inmaculada1,Casals Cristina2ORCID,Espinar-Toledo Milagrosa3,Barón-López Francisco Javier4ORCID,Martínez-Valero Francisco Javier5,Vázquez-Sánchez María Ángeles6ORCID

Affiliation:

1. Puerta Blanca Clinical Management Unit, Malaga-Guadalhorce Health District, 29004 Malaga, Spain

2. ExPhy Research Group, Department of Physical Education, Instituto de Investigación e Innovación Biomédica de Cádiz (INiBICA), Universidad de Cádiz, 11519 Puerto Real, Spain

3. Rincón de la Victoria Clinical Management Unit, Malaga-Guadalhorce Health District, 29730 Malaga, Spain

4. Faculty of Health Sciences, Institute of Biomedical Research in Málaga (IBIMA), University of Malaga, 29016 Malaga, Spain

5. Midlothian Foot Care, Dalkeith and National Health Service, Dalkeith EH22 1DU, UK

6. Department of Nursing, Faculty of Health Sciences, PASOS Research Group and UMA REDIAS Network of Law and Artificial Intelligence Applied to Health and Biotechnology, University of Malaga, 29071 Malaga, Spain

Abstract

The aim of the study was to determine whether the satisfaction of cancer patients with in-home palliative care is associated with the impact of disease symptoms and with self-perceived quality of life. This was a cross-sectional descriptive study, conducted in the primary health care sector in six clinical management units, where 72 patients were recruited over a period of six months. The severity of symptoms was determined by the Edmonton Symptom Assessment System (ESAS). Quality of life was evaluated with the EORTC QLQ-C30 (version 3) questionnaire, and patients’ satisfaction with the care received was evaluated by the Client Satisfaction Questionnaire (CSQ-8). The patients’ satisfaction with the health care received was represented by an average score of 6, on a scale of 1–10; thus, there is room for improvement in patient satisfaction. Moreover, it was found that more intense symptoms and lower quality of life are associated with lower satisfaction with health care received (p = 0.001). Similarly, when symptoms are more severe, the quality of life is lower (p < 0.001). The identification of fatigue, reduced well-being, pain, drowsiness, and depression as the symptoms experienced with the highest intensity by our patients provides valuable information for health care providers in developing individualized symptom management plans for patients with advanced cancer.

Funder

Regional Health Ministry of “Junta de Andalucia”

Publisher

MDPI AG

Subject

Health Information Management,Health Informatics,Health Policy,Leadership and Management

Reference44 articles.

1. Wild, C.P., Weiderpass, E., and Stewart, B.W. (2020). World Cancer Report: Cancer Research for Cancer Prevention, International Agency for Research on Cancer. World Cancer Reports.

2. Integration of oncology and palliative care: A Lancet Oncology Commission;Kaasa;Lancet Oncol.,2018

3. Pre-screening o f patient-reported symptoms using the Edmonton Symptom Assessment System in outpatient palliative cancer care;Lee;Eur. J. Cancer Care,2020

4. Symptom Management and Palliative Care for Patients with Cancer;Yates;Nurs. Clin. N. Am.,2017

5. Incorporating palliative care into oncology practice: Why and how;Hussaini;Clin. Adv. Hematol. Oncol.,2021

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