Perspectives on Emotional Care: A Qualitative Study with Cancer Patients, Carers, and Health Professionals

Author:

Krishnasamy Meinir1234ORCID,Hassan Heidi1,Jewell Carol2,Moravski Irene23,Lewin Tennille125

Affiliation:

1. Academic Nursing Unit, Peter MacCallum Cancer Centre, Melbourne, VIC 3000, Australia

2. Department of Nursing, School of Health Sciences, University of Melbourne, Melbourne, VIC 3052, Australia

3. Victorian Comprehensive Cancer Centre Alliance, Melbourne, VIC 3000, Australia

4. Sir Peter MacCallum Department of Oncology, University of Melbourne, Melbourne, VIC 3052, Australia

5. Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, VIC 3168, Australia

Abstract

The emotional consequences of a cancer diagnosis are well documented and range from emotional distress, defined as suffering associated with feelings such as shock, fear, and uncertainty, through to psychological distress that may manifest as depression, anxiety, feelings of hopelessness, or heightened risk of suicide. This study set out to explore the assumption that the provision of emotional care should be the platform upon which all other aspects of cancer care are delivered and, that without attention to emotional care, no other aspects of cancer care can be fully realized. Utilizing qualitative focus groups and in-depth interviews with 47 patients, carers, and health professionals, emotional care was shown to be (1) fundamental to the provision of comprehensive cancer care, (2) essential to easing the burden of a cancer diagnosis and demands of treatment, (3) everyone’s business, and (4) a component of cancer care at any time and every time. Future studies are needed to test interventions to enhance provision of intentional, purposeful, and individualized emotional care to help patents achieve the best health outcomes possible.

Funder

Victorian Department of Health, Australia

Publisher

MDPI AG

Subject

Health Information Management,Health Informatics,Health Policy,Leadership and Management

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