Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management- focused approaches and their evolution

Author:

Bernabé César H.1,Thielemans Lieze2,Kaliyaperumal Rajaram1,Carta Claudio3,Zhang Shuxin45,van Gelder Celia W.G.6,Benis Nirupama45,da Silva Santos Luiz Olavo Bonino17,Cornet Ronald45,Vieira Bruna dos Santos89,Lalout Nawel910,Henriques Ines9,Ballesteros Alberto Cámara11,Burger Kees1,Kersloot Martijn G.4512,Ehrhart Friederike13,van Enckevort Esther14,Evelo Chris T.1315,Gray Alasdair J. G.16,Hanauer Marc17,Hettne Kristina18,de Ligt Joep19,Pereira Arnaldo20,Queralt-Rosinach Núria1,Schultes Erik2122,Taruscio Domenica3,Waagmeester Andra23,Wilkinson Mark D.11,Willighagen Egon L.13,Jansen Mascha6,Mons Barend121,Roos Marco1,Jacobsen Annika1

Affiliation:

1. Biosemantics Group, Department of Human Genetics, Leiden University Medical Centre, Leiden, The Netherlands

2. NIHR Academic Fellow in General Practice, University College London and The Royal Free NHS Foundation Trust

3. National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy

4. Department of Medical Informatics, Amsterdam UMC location University of Amsterdam, Meibergdreef 9, Amsterdam, The Netherlands

5. Amsterdam Public Health, Methodology & Digital Health, Amsterdam, The Netherlands

6. Health-RI, Utrecht, The Netherlands

7. Semantics, Services and Cybersecurity group, University of Twente, Enschede, The Netherlands

8. Department of Medical Imaging, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands

9. Department of Medical BioSciences, Radboud University Medical Center, Nijmegen, The Netherlands

10. The Duchenne Parent Project, Veneendaal, The Netherlands

11. Departamento de Biotecnología-Biología Vegetal, Escuela Técnica Superior de Ingeniería Agronómica, Alimentaria y de Biosistemas, Centro de Biotecnología y Genómica de Plantas. Universidad Politécnica de Madrid (UPM) - Instituto Nacional de Investigación y Tecnología Agraria y Alimentaria-CSIC (INIA-CSIC). Campus Montegancedo, Pozuelo de Alarcón (Madrid), Spain.

12. Castor, Amsterdam, The Netherlands

13. Department of Bioinformatics - BiGCaT, Maastricht University, Maastricht, The Netherlands

14. University Medical Center Groningen, University of Groningen, Groningen, The Netherlands

15. Maastricht Centre for Systems Biology (MaCSBio), Maastricht University, Maastricht, The Netherlands

16. Department of Computer Science, Heriot-Watt University, Edinburgh, UK

17. INSERM, US14—Orphanet, Plateforme Maladies Rares, Paris, France

18. Centre for Digital Scholarship, Leiden University Libraries, The Netherlands

19. Center for Molecular Medicine, Cancer Genomics Netherlands, Department of Genetics, University Medical Center Utrecht, University Utrecht, The Netherlands

20. University of Aveiro, DETI/IEETA, Aveiro, Portugal

21. GO FAIR Foundation, Leiden, The Netherlands

22. The Leiden Academic Center for Drug Research, Leiden, The Netherlands

23. Micelio, Ekeren-Antwerp, Belgium

Abstract

Abstract Since 2014, “Bring Your Own Data” workshops (BYODs) have been organised to inform people about the process and benefits of making resources Findable, Accessible, Interoperable, and Reusable (FAIR, and the FAIRification process). The BYOD workshops’ content and format differ depending on their goal, context, and the background and needs of participants. Data-focused BYODs educate domain experts on how to make their data FAIR to find new answers to research questions. Management-focused BYODs promote the benefits of making data FAIR and instruct project managers and policy-makers on the characteristics of FAIRification projects. Software-focused BYODs gather software developers and experts on FAIR to implement or improve software resources that are used to support FAIRification. Overall, these BYODs intend to foster collaboration between different types of stakeholders involved in data management, curation, and reuse (e.g. domain experts, trainers, developers, data owners, data analysts, FAIR experts). The BYODs also serve as an opportunity to learn what kind of support for FAIRification is needed from different communities and to develop teaching materials based on practical examples and experience. In this paper, we detail the three different structures of the BYODs and describe examples of early BYODs related to plant breeding data, and rare disease registries and biobanks, which have shaped the structure of the workshops. We discuss the latest insights into making BYODs more productive by leveraging our almost ten years of training experience in these workshops, including successes and encountered challenges. Finally, we examine how the participants’ feedback has motivated the research on FAIR, including the development of workflows and software.

Publisher

MIT Press

Subject

Artificial Intelligence,Library and Information Sciences,Computer Science Applications,Information Systems

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