A Catalyst for Change: The European Cancer Patient's Bill of Rights

Author:

Lawler Mark1,Le Chevalier Thierry2,Murphy Martin J.3,Banks Ian4,Conte Pierfranco5,De Lorenzo Francesco67,Meunier Françoise8,Pinedo H.M.9,Selby Peter10,Armand Jean-Pierre11,Barbacid Mariano12,Barzach Michèle13,Bergh Jonas14,Bode Gerlind15,Cameron David A.16,Braud Filippo17,Gramont Aimery18,Diehl Volker19,Diler Sarper20,Erdem Sema21,Fitzpatrick John M.2223,Geissler Jan2425,Hollywood Donal2627,Højgaard Liselotte2829,Horgan Denis30,Jassem Jacek31,Johnson Peter W.3233,Kapitein Peter34,Kelly Joan2235,Kloezen Sandra36,La Vecchia Carlo37,Löwenberg Bob38,Oliver Kathy39,Sullivan Richard40,Tabernero Josep41,Van de Velde Cornelis J.42,Wilking Nils43,Wilson Roger44,Zielinski Christoph45,Hausen Harald46,Johnston Patrick G.147

Affiliation:

1. Centre for Cancer Research and Cell Biology, School of Medicine, Dentistry and Biomedical Sciences, Queens University Belfast, Belfast, United Kingdom;

2. Institute Gustave Roussy, Paris, France;

3. European Cancer Concord, Society for Translational Oncology, Durham, North Carolina, USA;

4. European Men's Health Forum, Brussels, Belgium;

5. Istituto Oncologico Veneto, Padova, Italy;

6. Italian Federation of Volunteer-based Cancer Organizations, Rome, Italy;

7. European Cancer Patient Coalition, Brussels, Belgium;

8. European Organisation for Research and Treatment of Cancer, Brussels, Belgium;

9. VuMC Cancer Center, Amsterdam, The Netherlands;

10. Department of Medical Oncology, University of Leeds, Leeds, United Kingdom;

11. Institut Curie, Paris, France;

12. Centro Nacional de Investigaciones Oncólogicas, Madrid, Spain;

13. IHU Strasbourg Board of Trustees, Strasbourg, France;

14. Department of Oncology-Pathology, Karolinska Institut, Stockholm, Sweden;

15. International Confederation of Childhood Cancer Parent Organizations, Nieuwegein, The Netherlands;

16. Edinburgh Cancer Centre, NHS Lothian & Edinburgh Cancer Research Centre, University of Edinburgh, Western General Hospital, Edinburgh, United Kingdom;

17. Medical Oncology Division, National Cancer Institute, Milan, Italy;

18. Department of Oncology, Hôpital Saint-Antoine, Paris, France;

19. Internal Medicine, University of Cologne, Köln, Germany;

20. Myeloma Patients Europe, Istanbul, Turkey;

21. Europa Donna, Piazza Amendola, Milan, Italy;

22. Irish Cancer Society, Dublin, Ireland;

23. Department of Surgery, University College Dublin, Dublin, Ireland;

24. Leukemia Patient Advocates Foundation, Berne, Switzerland;

25. European Patients Academy on Therapeutic Innovation, Riemerling, Germany;

26. Academic Unit of Clinical and Molecular Oncology, St James's Hospital and Trinity College Dublin, Dublin, Ireland;

27. † Deceased.

28. Danish National Research Foundation, Copenhagen, Denmark;

29. Faculty of Health and Medical Sciences, University of Copenhagen, Denmark;

30. European Alliance for Personalised Medicine, Brussels, Belgium;

31. Department of Oncology and Radiotherapy, Medical University of Gdansk, Gdansk, Poland;

32. Department of Medical Oncology, University of Southampton, Southampton, United Kingdom;

33. Cancer Research UK, London, United Kingdom;

34. Inspire2Live, Amsterdam, The Netherlands;

35. European Cancer Leagues, Brussels, Belgium;

36. Dutch Cancer Society, Amsterdam, The Netherlands;

37. Dipartimento di Epidemiologia, Istituto di Ricerche Farmacologiche “Mario Negri” Milan, Italy;

38. Department of Hematology, Erasmus University Medical Center, Rotterdam, The Netherlands;

39. International Brain Tumor Alliance Tadworth, Surrey, United Kingdom;

40. Institute of Cancer Policy, Kings Health Partners Integrated Cancer Centre, London, United Kingdom;

41. Vall D'Hebron Institute of Oncology, Barcelona, Spain;

42. Department of Surgery, Leiden University Medical Center, Leiden, The Netherlands;

43. Department of Oncology, Karolinska Institut, Stockholm, Sweden, and Skåne University Hospital, Lund, Sweden;

44. Sarcoma Patients EuroNet, Bad Nauheim, Germany;

45. Comprehensive Cancer Center and Department of Medicine I, Medical University Vienna - General Hospital, Vienna, Austria;

46. German Cancer Research Centre, University of Heidelberg, Heidelberg, Germany;

47. School of Medicine, Dentistry and Biomedical Sciences, and Institute of Health Sciences, Queens University Belfast, Belfast, United Kingdom

Abstract

The European Cancer Concord is a unique patient-centered partnership that will act as a catalyst to achieve improved access to an optimal standard of cancer care and research for European citizens. In order to provide tangible benefits for European cancer patients, the partnership proposes the creation of a “European Cancer Patient's Bill of Rights,” a patient charter that will underpin equitable access to an optimal standard of care for Europe's citizens.

Funder

Sanofi Oncology

Bayer

Bristol-Myers Squibb Foundation

Irish Cancer Society

Saatchi and Saatchi Science

Publicis Healthcare Communications Group

Publisher

Oxford University Press (OUP)

Subject

Cancer Research,Oncology

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