Adolescents and Young Adults With a “Rare” Cancer: Getting Past Semantics to Optimal Care for Patients With Germ Cell Tumors

Author:

Stoneham Sara J.1,Hale Juliet P.2,Rodriguez-Galindo Carlos3,Dang Ha4,Olson Thomas5,Murray Matthew67,Amatruda James F.8,Thornton Claire9,Arul G. Suren10,Billmire Deborah11,Krailo Mark4,Stark Dan12,Covens Al13,Hurteau Jean14,Stenning Sally15,Nicholson James C.6,Gershenson David8,Frazier A. Lindsay3

Affiliation:

1. Children's and Young Persons Cancer Services, University College London Hospital Trusts, London, United Kingdom;

2. Department of Paediatric Oncology, Royal Victoria Infirmary, Newcastle upon Tyne Hospitals trust, Newcastle upon Tyne, United Kingdom;

3. Department of Pediatric Oncology, Dana-Farber Cancer Institute and Boston Children's Hospital, Boston, Massachusetts, USA;

4. Children's Oncology Group, Monrovia, California, USA;

5. Department of Pediatric Oncology, Children's Healthcare of Atlanta, Emory University, Atlanta, Georgia, USA;

6. Department of Paediatric Oncology, Cambridge University Hospitals NHS Foundation Trust, Cambridge, United Kingdom;

7. Department of Pathology, University of Cambridge, Cambridge, United Kingdom;

8. University of Texas Southwestern Medical Center and Children's Medical Center, Dallas, Texas, USA;

9. Department of Pathology, Royal Victoria Hospital, Belfast Health Trust, Belfast, United Kingdom;

10. Department of Pediatric Surgery, Birmingham Children's Hospital NHS Foundation Trust, Birmingham, United Kingdom;

11. Riley Hospital for Children, Indianapolis, Indiana, USA;

12. Department of Medical Oncology, St. James's Institute of Oncology, St. James University Hospital, Leeds, United Kingdom;

13. Department of Gynecology Oncology, University of Toronto, Sunnybrook Health Sciences Center, Ontario, Canada;

14. Department of Gynecologic Oncology, North Shore University Health System, Evanston, Illinois, USA;

15. Medical Research Council Clinical Trials Unit, London, United Kingdom

Abstract

Because the tumors of adolescence and young adulthood (AYA) are distinct from those that occur earlier and later in life, the most common tumors in this age group are termed “rare.” We offer a collaborative, cross-disciplinary, evidence-based approach, advocated and funded by civil society, to advance the field of germ cell tumor and potentially to apply to other rare AYA tumors.

Funder

Bridging the Gap Fund of the Dana-Farber Cancer Institute

Katie Walker Cancer Trust

Teenage Cancer Trust

William Guy Forbeck Foundation

Publisher

Oxford University Press (OUP)

Subject

Cancer Research,Oncology

Reference43 articles.

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