Optimism and Psychosocial Functioning in Caring for Children with Battens and other Neurological Diseases

Abstract

Psychosocial functioning was compared between 32 caregivers of children with Batten's disease, a terminal, neurodegenerative illness, and with 20 caregivers of children with epilepsy or cerebral palsy. Caregivers' optimism was expected to be associated with better psychosocial functioning, regardless of the children's illness. A multivariate analysis of covariance indicated caregivers of children with Battens disease had significantly ( p < .01) higher depression and anxiety scores on the Symptom Checklist-90 and demands on health and time schedule scores measured by the Caregiver Reaction Assessment than the comparison group. Pearson product-moment correlations were significant and ranged from –.52 to –.48 ( p < .01) for scores on Life Orientation Test optimism and psychosocial functioning as measured by the Family Environment Scale and the SCL-90 for all participants. Findings suggest that caregivers of children with Battens disease experience greater psychological distress than the comparison group and that optimism is positively related to better caregivers' psychosocial functioning regardless of the type of illness.