Quality of Life in Huntington's Disease: Critique and Recommendations for Measures Assessing Patient Health-Related Quality of Life and Caregiver Quality of Life

Author:

Mestre Tiago A.1,Carlozzi Noelle E.2,Ho Aileen K.3,Burgunder Jean-Marc4,Walker Francis5,Davis Aileen M.6,Busse Monica7,Quinn Lori8,Rodrigues Filipe B.91011,Sampaio Cristina12,Goetz Christopher G.13,Cubo Esther14,Martinez-Martin Pablo15,Stebbins Glenn T.11,

Affiliation:

1. Parkinson's Disease and Movement Disorders Center, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute; University of Ottawa Brain and Mind Institute; Ottawa Canada

2. Department of Physical Medicine and Rehabilitation; University of Michigan; Ann Arbor Michigan USA

3. School of Psychology and Clinical Language Sciences; University of Reading; Reading UK

4. Swiss HD Center, NeuroZentrumSiloah and Department of Neurology; University of Bern; Bern Switzerland

5. Department of Neurology; Wake Forest School of Medicine; Winston Salem North Carolina USA

6. Krembil Research Institute, University Health Network and Institute of Health Policy, Management and Evaluation and Rehabilitation Institute; University of Toronto; Toronto Canada

7. Centre for Trials Research; Cardiff University; Wales UK

8. Department of Biobehavioral Sciences, Teachers College; Columbia University; New York, NY USA

9. Huntington's Disease Centre, Institute of Neurology; University College London; London UK

10. Clinical Pharmacology Unit, Instituto de Medicina Molecular; Lisbon Portugal

11. Laboratory of Clinical Pharmacology and Therapeutics, Faculty of Medicine; University of Lisbon; Lisbon Portugal

12. CHDI Foundation/CHDI Management; Princeton New Jersey USA

13. Department of Neurological Sciences; Rush University Medical Center; Chicago Illinois USA

14. Department of Neurology; Hospital Universitário Hermanos Yagüe; Burgos Spain

15. National Center of Epidemiology and Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas (CIBERNED) Carlos III Institute of Health; Madrid Spain

Publisher

Wiley

Subject

Neurology (clinical),Neurology

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