Affiliation:
1. Department of Nursing Sciences Sophiahemmet University Stockholm Sweden
2. Department of Health Care Sciences Palliative Research Centre, Marie Cederschiöld University Stockholm Sweden
3. Advanced Pediatric Home Care, Karolinska University Hospital Stockholm Sweden
4. Department of Women's and Children's Health Uppsala University Uppsala Sweden
Abstract
AbstractBackgroundDespite the challenges that caring for a child with cancer brings for parents, little knowledge is available concerning the effects on the parents’ couple relationship. Furthermore, few interventions have been designed to support parents in their couple relationship. The aim of this paper was, therefore, to explore parents’ experiences of their couple relationship while having a dependent child with cancer and the support they received from a family‐based intervention, the Family Talk Intervention (FTI).MethodsData for this paper were taken from semi‐structured interviews performed in a pilot study of the FTI in the context of pediatric oncology. In total, 22 couples were interviewed after participating in the FTI. The interviews were transcribed and analyzed using qualitative content analysis.ResultsParents described how maintaining a couple relationship while living with childhood cancer could be very challenging and was not given the highest priority. The FTI was considered a way of providing important support to the couple and a chance for them to sit down together and listen to each other's perspectives on the situation. Parents described that the FTI had helped them gain an increased mutual understanding, sometimes also helping them to realize that they needed more extensive professional support in their relationship.ConclusionsLiving with childhood cancer and upholding a healthy couple relationship is challenging for parents. The FTI has the potential to support couples, mainly by providing opportunities for parents to communicate with each other. However, some couples may be in need of a tailored clinical intervention.
Subject
Oncology,Hematology,Pediatrics, Perinatology and Child Health
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