Research participant understanding and engagement in an institutional, self‐consent biobank model-Reference-Cited by-同舟云学术

Research participant understanding and engagement in an institutional, self‐consent biobank model

Published:2020-09-20 Issue:1 Volume:30 Page:257-267
ISSN:1059-7700
Container-title:Journal of Genetic Counseling
language:en
Short-container-title:Jrnl of Gene Coun

Author:

Schmanski Andrew¹,Roberts Emily²,Coors Marilyn²,Wicks Stephen J.²,Arbet Jaron³,Weber Rachel³,Crooks Kristy²,Barnes Kathleen C.²,Taylor Matthew R. G.²⁴

Affiliation:

1. Department of Genetic Medicine Munroe‐Meyer Institute for Genetics and Rehabilitation University of Nebraska Medical Center Omaha NE USA

2. Department of Medicine Colorado Center for Personalized Medicine University of Colorado Anschutz Medical Campus Aurora CO USA

3. Department of Biostatistics and Informatics Colorado School of Public Health University of Colorado Anschutz Medical Campus Aurora CO USA

4. Adult Medical Genetics Program University of Colorado Anschutz Medical Campus Aurora CO USA

Funder

University of Colorado

Publisher

Wiley

Subject

Genetics(clinical)

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/jgc4.1316

Reference41 articles.

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4. Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention

5. Revised 'Common Rule' Shapes Protections For Research Participants;Bierer B. E.;Health Affairs (Millwood),2017

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4. Biobanks: Conservation of the humanity scientific heritage;IATREIA;2022

5. Return of individual research results from genomic research: A systematic review of stakeholder perspectives;PLOS ONE;2021-11-08