“It's Not Me, It's Not Really Me.” Insights From Patients on Living With Systemic Sclerosis: An Interview Study

Author:

Sumpton Daniel1,Thakkar Vivek2,O'Neill Sean3,Singh-Grewal Davinder4,Craig Jonathan C.5,Tong Allison5

Affiliation:

1. University of Sydney; Sydney, The Children's Hospital at Westmead, Westmead, Liverpool Hospital and Ingham Institute for Applied Medical Research; Liverpool New South Wales Australia

2. Liverpool Hospital and Ingham Institute for Applied Medical Research; Liverpool, and Western Sydney University; Campbelltown New South Wales Australia

3. Liverpool Hospital; University of New South Wales, and the Ingham Institute for Applied Medical Research; Liverpool New South Wales Australia

4. The Children's Hospital at Westmead; Westmead, and Liverpool Hospital and Ingham Institute for Applied Medical Research; Liverpool New South Wales Australia

5. University of Sydney; Sydney, and The Children's Hospital at Westmead; Westmead New South Wales Australia

Publisher

Wiley

Subject

Rheumatology

Reference42 articles.

1. Scleroderma;Gabrielli;N Engl J Med,2009

2. Changes in causes of death in systemic sclerosis, 1972-2002;Steen;Ann Rheum Dis,2007

3. Trends in mortality in patients with systemic sclerosis over 40 years: a systematic review and meta-analysis of cohort studies;Elhai;Rheumatology (Oxford),2012

4. Frequency and impact of symptoms experienced by patients with systemic sclerosis: results from a Canadian National Survey;Bassel;Rheumatology (Oxford),2011

5. Frequency and impact of disease symptoms experienced by patients with systemic sclerosis from five European countries;Willems;Clin Exp Rheumatol,2014

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