Developing a national implementation strategy to accelerate uptake of evidence‐based family caregiver support in U.S. cancer centers

Author:

Odom J. Nicholas123ORCID,Young Heather M.4,Sterba Katherine5,Sannes Timothy S.6ORCID,Reinhard Susan7,Nightingale Chandylen L.8ORCID,Meier Diane9,Gray Tamryn F.10,Ferrell Betty11ORCID,Fernandez Maria E.12,Donovan Heidi13,Curry Kayleigh1,Currie Erin R.1,Bryant Tara14,Bakitas Marie A.123,Applebaum Allison J.15ORCID

Affiliation:

1. School of Nursing University of Alabama at Birmingham (UAB) Birmingham Alabama USA

2. Division of Geriatrics, Gerontology, and Palliative Care UAB Department of Medicine Birmingham Alabama USA

3. UAB Center for Palliative and Supportive Care Birmingham Alabama USA

4. Betty Irene Moore School of Nursing University of California, Davis Davis California USA

5. Department of Public Health Sciences Medical University of South Carolina Charleston South Carolina USA

6. UMass Memorial Cancer Center Worcester Massachusetts USA

7. AARP Public Policy Institute Washington District of Columbia USA

8. Department of Social Sciences and Health Policy Wake Forest University School of Medicine Winston‐Salem North Carolina USA

9. Mount Sinai Medical Center New York New York USA

10. Department of Psychosocial Oncology and Palliative Care Dana‐Farber Cancer Institute Harvard Medical School Boston Massachusetts USA

11. City of Hope Duarte California USA

12. Department of Health Promotion and Behavioral Sciences University of Texas Health Science Center at Houston School of Public Health Houston Texas USA

13. Schools of Nursing and Medicine and the National Rehabilitation Research & Training Center on Family Support University of Pittsburgh Pittsburgh Pennsylvania USA

14. Viva Health, Inc. Birmingham Alabama USA

15. Department of Psychiatry and Behavioral Sciences Memorial Sloan Kettering Cancer Center New York New York USA

Abstract

AbstractObjectiveCharacterize key factors and training needs of U.S. cancer centers in implementing family caregiver support services.MethodsSequential explanatory mixed methods design consisting of: (1) a national survey of clinicians and administrators from Commission‐on‐Cancer‐accredited cancer centers (N = 238) on factors and training needed for establishing new caregiver programs and (2) qualitative interviews with a subsample of survey respondents (N = 30) to elicit feedback on survey findings and the outline of an implementation strategy to facilitate implementation of evidence‐based family caregiver support (the Caregiver Support Accelerator). Survey data was tabulated using descriptive statistics and transcribed interviews were analyzed using thematic analysis.ResultsTop factors for developing new caregiver programs were that the program be: consistent with the cancer center's mission and strategic plan (87%), supported by clinic leadership (86.5%) and providers and staff (85.7%), and low cost or cost effective (84.9%). Top training needs were how to: train staff to implement programs (72.3%), obtain program materials (63.0%), and evaluate program outcomes (62.6%). Only 3.8% reported that no training was needed. Qualitative interviews yielded four main themes: (1) gaining leadership, clinician, and staff buy‐in and support is essential; (2) cost and clinician burden are major factors to program implementation; (3) training should help with adapting and marketing programs to local context and culture; and (4) the Accelerator strategy is comprehensive and would benefit from key organizational partnerships and policy standards.ConclusionFindings will be used to inform and refine the Accelerator implementation strategy to facilitate the adoption and growth of evidence‐based cancer caregiver support in U.S. cancer centers.

Funder

Gordon and Betty Moore Foundation

Publisher

Wiley

Subject

Psychiatry and Mental health,Oncology,Experimental and Cognitive Psychology

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