Genetic counselors, patients', and carers’ views on an Australian clinical genetics service information system

Author:

Speechly Catherine1ORCID,Stenhouse Rachael1,Berman Yemima12,Barlow‐Stewart Kristine1,Fleming Jane1,Petrie Dianne3,Culling Bronwyn4

Affiliation:

1. Faculty of Medicine and Health Northern Clinical School University of Sydney St Leonards NSW Australia

2. Department of Clinical Genetics Royal North Shore Hospital St Leonards NSW Australia

3. Williams Syndrome Australia Coogee NSW Australia

4. Clinical Applications Support, Service Delivery eHealth NSW Chatswood NSW Australia

Publisher

Wiley

Subject

Genetics(clinical)

Reference37 articles.

1. Consumer Perceptions of Electronic Health Information Exchange

2. Australian Digital Health Agency. (2018).My Health Record. Retrieved fromwww.myhealthrecord.gov.au.

3. Australian Law Reform Commission & Australian Health Ethics Committee. (2003).Essentially yours: the protection of human genetic information in Australia(Vol. no. 96). Retrieved fromhttps://www.alrc.gov.au/publication/essentially‐yours‐the‐protection‐of‐human‐genetic‐information‐in‐australia‐alrc‐report‐96/

4. Using thematic analysis in psychology

5. Patients want granular privacy control over health information in electronic medical records

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