Getting ready for real‐world use of electronic patient‐reported outcomes (ePROs) for patients with cancer: A National Comprehensive Cancer Network ePRO Workgroup paper

Author:

Cracchiolo Jennifer R.1ORCID,Arafat Waddah2,Atreja Ashish3,Bruckner Lauren4,Emamekhoo Hamid5ORCID,Heinrichs Tricia6ORCID,Raldow Ann C.7ORCID,Smerage Jeffrey8,Stetson Peter1,Sugalski Jessica6,Tevaarwerk Amye J.9ORCID

Affiliation:

1. Memorial Sloan Kettering Cancer Center New York New York USA

2. Simmons Comprehensive Cancer Center The University of Texas Southwestern Medical Center Dallas Texas USA

3. University of California‐Davis Comprehensive Cancer Center Sacramento California USA

4. Roswell Park Comprehensive Cancer Center Buffalo New York USA

5. University of Wisconsin Carbone Cancer Center Madison Wisconsin USA

6. National Comprehensive Cancer Network Plymouth Meeting Pennsylvania USA

7. University of California‐Los Angeles Jonsson Comprehensive Cancer Center Los Angeles California USA

8. University of Michigan Rogel Cancer Center Ann Arbor Michigan USA

9. Mayo Clinic Comprehensive Cancer Center Rochester Minnesota USA

Abstract

Electronic patient‐reported outcome (ePRO) programs may offer advantages for patients with cancer, clinicians, health care systems, payors, and society in general; but developing and maintaining an ePRO program will require cancer centers to navigate defining meaningful problems, collecting ePROs, implementing action when those ePROs require intervention without over‐burdening clinicians, and monitoring the successes and failures of their ePRO programs. Physician informaticists from the National Comprehensive Cancer Network Electronic Health Record Advisory Group offer 10 guiding principles to consider when contemplating, building, or refining an ePRO program for patients with cancer.

Publisher

Wiley

Subject

Cancer Research,Oncology

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