Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance-Reference-Cited by-同舟云学术

Generic PROMIS item banks in adults with hemophilia for patient‐reported outcome assessment: Feasibility, measurement properties, and relevance

Published:2021-11-21 Issue:8 Volume:5 Page:
ISSN:2475-0379
Container-title:Research and Practice in Thrombosis and Haemostasis
language:en
Short-container-title:Res Pract Thromb Haemost

Author:

Kuijlaars Isolde A. R.¹^ORCID,Teela Lorynn²^ORCID,Vulpen Lize F. D.¹^ORCID,Timmer Merel A.¹^ORCID,Coppens Michiel³^ORCID,Gouw Samantha C.⁴⁵^ORCID,Peters Marjolein⁴,Kruip Marieke J. H. A.⁶^ORCID,Cnossen Marjon H.⁷^ORCID,Muis Jelmer J.²⁴,Hoorn Evelien S.⁸^ORCID,Haverman Lotte²^ORCID,Fischer Kathelijn¹^ORCID

Affiliation:

1. Van Creveldkliniek University Medical Center Utrecht Utrecht University Utrecht The Netherlands

2. Amsterdam University Medical Centers Emma Children’s Hospital Child and Adolescent Psychiatry & Psychosocial Care Amsterdam Reproduction and Development Amsterdam Public Health University of Amsterdam Amsterdam The Netherlands

3. Department of Vascular Medicine Amsterdam Cardiovascular Sciences Amsterdam University Medical Centers University of Amsterdam Amsterdam The Netherlands

4. Emma Children’s Hospital Amsterdam University Medical Centers Pediatric Hematology University of Amsterdam Amsterdam The Netherlands

5. Department of Clinical Epidemiology Leiden University Medical Center Leiden The Netherlands

6. Erasmus MC Department of Hematology Erasmus University Medical Center Rotterdam Rotterdam The Netherlands

7. Erasmus MC Department of Pediatric Hematology Sophia Children’s Hospital Erasmus University Medical Center Rotterdam Rotterdam The Netherlands

8. Erasmus MC Department of Public Health Erasmus University Medical Center Rotterdam Rotterdam The Netherlands

Publisher

Wiley

Subject

Hematology

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/rth2.12621

Reference53 articles.

1. WFH Guidelines for the Management of Hemophilia, 3rd edition

2. How to discuss gene therapy for haemophilia? A patient and physician perspective

3. Emicizumab Prophylaxis in Hemophilia A with Inhibitors

4. Sports participation and sports injuries in Dutch boys with haemophilia

5. Haemophilia and ageing

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