Using a qualitative approach to conceptualize concerns of patients with neurofibromatosis type 1 associated plexiform neurofibromas (pNF) across the lifespan-Reference-Cited by-同舟云学术

Using a qualitative approach to conceptualize concerns of patients with neurofibromatosis type 1 associated plexiform neurofibromas (pNF) across the lifespan

Published:2016-09-26 Issue:1 Volume:173 Page:79-87
ISSN:1552-4825
Container-title:American Journal of Medical Genetics Part A
language:en
Short-container-title:Am. J. Med. Genet.

Author:

Lai Jin-Shei¹²³,Jensen Sally E.¹⁴,Patel Zabin S.¹,Listernick Robert²³,Charrow Joel²³

Affiliation:

1. Department of Medical Social Sciences; Northwestern University Feinberg School of Medicine; Chicago Illinios

2. Department of Pediatrics; Northwestern University Feinberg School of Medicine; Chicago Illinios

3. Ann & Robert H. Lurie, Children's Hospital of Chicago; Chicago Illinios

4. Department of Surgery (Division of Organ Transplantation); Northwestern University Feinberg School of Medicine; Chicago Illinios

Funder

Neurofibromatosis Therapeutic Acceleration Program (NTAP)

Publisher

Wiley

Subject

Genetics (clinical),Genetics

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5. Measuring quality of life in chronic illness: The functional assessment of chronic illness therapy measurement system;Cella;Arch Phys Med Rehabil,2002

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