Our children are not a diagnosis: The experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18

Author:

Guon Jennifer1,Wilfond Benjamin S.23,Farlow Barbara4,Brazg Tracy23,Janvier Annie5

Affiliation:

1. Kaiser Permanente; Panorama City California

2. Treuman Katz Center for Pediatric Bioethics; Seattle Children's Research Institute; Seattle Washington

3. Department of Pediatrics; University of Washington School of Medicine; Seattle Washington

4. The DeVeber for Bioethics and Social Research; Canada

5. Department of Pediatrics and Clinical Ethics; University of Montreal, Sainte-Justine Hospital; Canada

Publisher

Wiley

Subject

Genetics (clinical),Genetics

Reference55 articles.

1. ACOG Committee 2009 www.acog.org/Resources_And_Publications/Committee Opinions/Committee on Ethics/Informed Consent

2. Natural history of trisomy 18 and trisomy 13: II. Psychomotor development;Baty;Am J Med Genet,1994

3. Why were they in such a hurry to see her die;Berg;Am J Hosp Palliat Care,2013

4. Avoidance of emergency surgery in newborn infants with trisomy 18;Bos;Lancet,1992

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