The psychosocial impact of 22q11 deletion syndrome on patients and families: A systematic review
Author:
Affiliation:
1. Sheffield Institute of Translational Neuroscience, The University of Sheffield; Sheffield United Kingdom
2. Sheffield Clinical Genetics Service, Sheffield Children's Hospital NHS Foundation Trust, Western Bank; Sheffield United Kingdom
Publisher
Wiley
Subject
Genetics (clinical),Genetics
Link
http://onlinelibrary.wiley.com/wol1/doi/10.1002/ajmg.a.38673/fullpdf
Reference62 articles.
1. Australian families living with rare disease: Experiences of diagnosis, health services use and needs for psychosocial support;Anderson;Orphanet Journal of Rare Diseases,2013
2. An examination of the relationship of anxiety and intelligence to adaptive functioning in children with chromosome 22q11.2 deletion syndrome;Angkustsiri;Journal of Developmental and Behavioral Pediatrics,2012
3. Patient and family experiences and opinions on adding 22q11 deletion syndrome to the newborn screen;Bales;Journal of Genetic Counseling,2010a
Cited by 29 articles. 订阅此论文施引文献 订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献
1. The mental health and traumatic experiences of mothers of children with 22q11DS;European Journal of Psychotraumatology;2024-05-23
2. Experiences and concerns of parents of children with a 16p11.2 deletion or duplication diagnosis: a reflexive thematic analysis;BMC Psychology;2024-03-12
3. Undeleting the voice of people with 22q11 deletion syndrome: A scoping review;Rare;2024
4. Exploring Health Literacy in 22q11.2 Deletion Syndrome: A Comprehensive Study on Access to Information, Teleorientation, and Social Media Engagement in Brazil;2023-12-08
5. Association between Multimorbidity and Quality of Life in 22q11.2 Deletion Syndrome: Cross-section Analysis Using the National Database of Designated Incurable Diseases of Japan;Iryo To Shakai;2023-11-10
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线，采集、加工和组织学术论文而形成的新型学术文献查询和分析系统，可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容，当前同舟云学术共收录了国内外主流学术期刊6万余种，收集的期刊论文及会议论文总量共计约1.5亿篇，并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询！咨询电话：010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3