1. Wolfson Institute; Queen Mary University of London; London United Kingdom
2. Faculty of Medicine; University of Southampton and Wessex Clinical Genetics Service; Southampton United Kingdom
3. Institute of Nursing Research; University of Ulster; Newtownabbey United Kingdom
4. Division of Medical Genetics; Lausanne Switzerland
5. Public Health Division of Gipuzkoa; Instituto BIO-Donostia, Basque Government; CIBER Epidemiologia y Salud Publica - CIBERESP; Spain
6. Department of Genetics; University Medical Center Groningen; University of Groningen; Groningen The Netherlands
7. Rare Diseases Research Area; FISABIO-Public Health; Valencia Spain
8. National Public Health and Medical Officer Service (NPHMOS); Budapest Hungary
9. Department of Health Sciences; University of Leicester; Leicester United Kingdom
10. Paediatric Department; Hospital Lillebaelt; Kolding Denmark
11. Department of Health Information and Research; Guardamangia Malta
12. Medical University of Graz; Graz Austria
13. INSERM; Paris France
14. Department of Global Public Health and Primary Care, University of Bergen, Norway and Medical Birth Registry of Norway, Norwegian Institute of Public Health, Bergen; Norway
15. Health Service Executive; Kilkenny Ireland
16. Centro de Estudos e registo de A C; Lisbon Portugal
17. Health Service Executive; Dublin Ireland
18. Provincial Institute for Hygiene; Antwerp Belgium
19. Health Service Executive; Cork Ireland
20. CNR Institute of Clinical Physiology; Pisa Italy
21. University Medical Center of the Johannes Gutenberg University; Mainz Germany
22. Institute of Health & Society, Newcastle University; Newcastle upon Tyne United Kingdom
23. Medical Faculty Otto-von-Guericke University Magdeburg; Magdeburg Germany
24. University of Oxford; Oxford United Kingdom
25. St Michael's Hospital; Bristol United Kingdom
26. Public Health Wales; Swansea United Kingdom
27. OMNI-Net Ukraine and Khmelnytsky Perinatal Center, Khmelnytsky; Ukraine