The Roles of Lifetime Enacted Stigma in Tic Symptoms among Young Adults with Tourette Syndrome

Abstract

AbstractBackgroundAlthough rarely framed as enacted stigma, adults with Tourette syndrome (ATS) have long suffered from discrimination associated with their tic symptoms. Given the high stress levels of enacted stigma that ATS experience, it is expected that their tic symptoms are profoundly impacted. However, the evidence linking enacted stigma to ATS's tic symptoms remains limited.MethodsThis study used a secondary data‐analysis approach to reanalyze the data from the follow‐up phase of a multi‐centered, randomized controlled trial in which a behavioral intervention was tested for its efficacy in managing tic symptoms. This study first conducted psychometric testing on a list of 16 enacted stigma events across five life stages and identified the underlying factor structure. The Yale Global Tic Severity Scale (YGTSS) was used to assess severity and impairment of current tic symptoms, whereas the Clinical Global Impression of Severity scale (CGI) was used to obtain the gestalt of clinical judgment on tic severity. A series of multivariate linear models were then fitted to test the relationships between different types of lifetime enacted stigma and current tic symptoms.ResultsThe analytic sample included 73 young ATS (average age of 23.2 [standard deviation = 2.5] years). The factor analysis identified three types of enacted stigmas: “traumatic events,” “confrontations,” and “subtle mistreatments.” In multivariate models, traumatic events significantly associated with YGTSS‐severity, whereas subtle mistreatments provided additional explanations for CGI.ConclusionsEnacted stigma may play important roles in shaping ATS's current tics symptom severity and, therefore, should be carefully considered in future intervention development.