Parents' Challenges and Physicians' Tasks in Disclosing Cancer to Children. A Qualitative Interview Study and Reflections on Professional Duties in Pediatric Oncology

Author:

Badarau Domnita O.1,Wangmo Tenzin1,Ruhe Katharina M.1,Miron Ingrid2,Colita Anca3,Dragomir Monica4,Schildmann Jan15,Elger Bernice S.1

Affiliation:

1. Institute for Biomedical Ethics; University of Basel; Basel Switzerland

2. Department of Pediatric Oncology; St. Mary Emergency Hospital; Iasi Romania

3. Department of Pediatric Hemato-oncology & Bone Marrow Transplantation; Fundeni Clinical Institute; Bucharest Romania

4. Department of Pediatric Oncology; Prof. Dr. Al. Trestioreanu Oncology Institute; Bucharest Romania

5. Institute for Medical Ethics and History of Medicine; Ruhr University Bochum; Bochum Germany

Funder

Botnar Grant of the University of Basel

HEMMI-Stiftung, Basel, Switzerland

Swiss National Science Foundation (SNF) grant

Publisher

Wiley

Subject

Oncology,Hematology,Pediatrics, Perinatology, and Child Health

Reference37 articles.

1. American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children;Pediatrics,2000

2. Report of the Council on Ethical and Judicial Affairs. CEJA Report 1-I-10. Amendment to E-10.016, Pediatric Decision-Making AMA 2010 1 6

3. SIOP Working Committee on psychosocial issues in pediatric oncology: Guidelines for communication of the diagnosis;Masera;Med Pediatr Oncol,1997

4. Measuring children's decision-making involvement regarding chronic illness management;Miller;J Pediatr Psychol,2012

5. Siop Working Committee on psychosocial issues in pediatric oncology: Valid informed consent and participative decision-making in children with cancer and their parents: A report of the SIOP Working Committee on psychosocial issues in pediatric oncology;Spinetta;Med Pediatr Oncol,2003

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