“It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment-Reference-Cited by-同舟云学术

“It's that invisible illness”: Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment

Published:2023-04 Issue:2 Volume:13 Page:
ISSN:2045-8940
Container-title:Pulmonary Circulation
language:en
Short-container-title:Pulm. circ.

Author:

Auriemma Catherine L.¹²^ORCID,Minhas Jasleen¹,Blue Randi¹,Lapatra Tess¹,Kawut Steven M.¹³,Courtright Katherine R.¹²

Affiliation:

1. Department of Medicine Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA

2. Palliative and Advanced Illness Research (PAIR) Center, Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA

3. Department of Biostatistics, Epidemiology, and Informatics Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA

Abstract

AbstractKnowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well‐being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.

Funder

National Heart, Lung, and Blood Institute

Publisher

Wiley

Subject

Pulmonary and Respiratory Medicine

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/pul2.12236

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