How to inform at‐risk relatives? Attitudes of 1379 Dutch patients, relatives, and members of the general population

Author:

Marleen van den Heuvel Lieke12,Stemkens Daphne3,Zelst‐Stams Wendy A. G.4,Willeboordse Floor5,Christiaans Imke16

Affiliation:

1. Department of Clinical Genetics Amsterdam University Medical Centers/University of Amsterdam Amsterdam The Netherlands

2. Netherlands Heart Institute Utrecht The Netherlands

3. VSOP Dutch Patient Alliance for Rare and Genetic Diseases Soest The Netherlands

4. Department of Human Genetics Radboud Institute for Health Sciences Radboud University Medical Center/Radboud University Nijmegen The Netherlands

5. Knowledge Institute of Medical Specialists Utrecht The Netherlands

6. Department of Genetics University Medical Center Groningen/University of Groningen Groningen The Netherlands

Funder

Dutch Association of Clinical Geneticists

‘Stichting Kwaliteitsgelden Patiënten Consumenten’

Netherlands Cardiovascular Research Initiative

Publisher

Wiley

Subject

Genetics(clinical)

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