Awareness, attitudes, and beliefs of dementia in Indonesia

Author:

Farina Nicolas1ORCID,Hassan Esra2,Theresia Imelda3,Fitri Fasihah Irfani4,Suswanti Ika5,Sani Tara Puspitarini3,Evans‐Lacko Sara6,Banerjee Sube7,Turana Yuda8

Affiliation:

1. Faculty of Health University of Plymouth Devon UK

2. Centre for Dementia Studies, Brighton and Sussex Medical School East Sussex UK

3. Alzheimer Indonesia Jakarta Indonesia

4. Department of Neurology, Faculty of Medicine Universitas Sumatera Utara Medan Indonesia

5. Department of Neurology School of Medicine and Health Sciences Atma Jaya Catholic University of Indonesia Jakarta Indonesia

6. Care Policy and Evaluation Centre London School of Economics and Political Science London UK

7. Faculty of Medicine and Health Sciences University of Nottingham Nottingham UK

8. School of Medicine and Health Sciences Atma Jaya Catholic University of Indonesia Jakarta Indonesia

Abstract

AbstractINTRODUCTIONTackling dementia stigma is a policy priority. In Indonesia, we have little insight into the general public's knowledge and attitudes about dementia.METHODSCross‐sectional study of 4430 Indonesian adults recruited from Jakarta and North Sumatra, Indonesia. Measures included dementia knowledge and attitudes.RESULTSA total of 86.3% (n = 3,803) of adults had not heard of the terms dementia or Alzheimer's disease, and commonly viewed dementia as a normal part of aging. Being older, incorrect knowledge about etiology, not having heard of the terms dementia and/or Alzheimer's disease, having less than primary education, and being from North Sumatra were associated with more negative attitudes (p‐values < 0.05).DISCUSSIONMisconceptions and lack of awareness about dementia are common in Indonesia. Attitudes tended not to be negative, but our research highlights factors associated with dementia attitudes. Future research should use this information to better tailor and target potential anti‐stigma strategies.Highlights Most Indonesians had not heard of the terms dementia and/or Alzheimer's disease and thought it was caused by normal aging. The majority of participants held mixed or positive attitudes towards dementia. A series of demographic factors alongside poor awareness were associated with negative attitudes towards dementia.

Publisher

Wiley

Reference36 articles.

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2. Comprehensive measurement of the prevalence of dementia in low- and middle-income countries: STRiDE methodology and its application in Indonesia and South Africa

3. Alzheimer's Disease International.World Alzheimer Report 2019 : Attitudes to dementia.Alzheimer's Disease International;2019. Accessed June 17 2019.https://www.alz.co.uk/research/world‐report‐2019

4. Understanding the impact of stigma on people with mental illness;Corrigan PW;World Psychiatry,2002

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