Impact of the National Amyotrophic Lateral Sclerosis Registry: Analysis of Registry‐funded Research-Reference-Cited by-同舟云学术

Impact of the National Amyotrophic Lateral Sclerosis Registry: Analysis of Registry‐funded Research

Published:2022-10-19 Issue:11 Volume:9 Page:1692-1701
ISSN:2328-9503
Container-title:Annals of Clinical and Translational Neurology
language:en
Short-container-title:Ann Clin Transl Neurol

Author:

Rechtman Lindsay¹^ORCID,Brenner Stephan²,Wright Marcienne²³,Ritsick Maggie¹,Rahman Farhana²,Han Moon²,Raymond Jaime²,Larson Theodore²,Horton D. Kevin²,Mehta Paul²

Affiliation:

1. McKing Consulting Corporation Atlanta Georgia USA

2. Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry National ALS Registry (CDC/ATSDR) Atlanta Georgia USA

3. U.S. Public Health Service Commissioned Corps Atlanta Georgia USA

Funder

Agency for Toxic Substances and Disease Registry

National Institutes of Health

Publisher

Wiley

Subject

Neurology (clinical),General Neuroscience

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/acn3.51660

Reference30 articles.

1. Prevalence of amyotrophic lateral sclerosis in the United States using established and novel methodologies, 2017;Mehta P;Amyotroph Lateral Scler Frontotemporal Degener,2022

2. Incidence of amyotrophic lateral sclerosis in the United States, 2014–2016

3. Time to diagnosis and factors affecting diagnostic delay in amyotrophic lateral sclerosis

4. Prediction of survival in amyotrophic lateral sclerosis: a nationwide, Danish cohort study

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3. The positive impact on translational research of Fondazione italiana di ricerca per la Sclerosi Laterale Amiotrofica (AriSLA), a non-profit foundation focused on amyotrophic lateral sclerosis. Convergence of ex-ante evaluation and ex-post outcomes when goals are set upfront;Frontiers in Research Metrics and Analytics;2023-08-04

4. So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience;The Patient - Patient-Centered Outcomes Research;2023-03-22