The power of patient‐led global collaboration

Author:

Bloom Lara1ORCID,Schubart Jane2,Bascom Rebecca3,Hakim Alan4ORCID,Francomano Clair A.5ORCID

Affiliation:

1. The Ehlers–Danlos Society New York New York USA

2. Departments of Surgery, Medicine, and Public Health Sciences Penn State College of Medicine Hershey PA USA

3. Medicine and Public Health Sciences Penn State College of Medicine Hershey PA USA

4. Medicine and Rheumatology, Wellington Hospital UK

5. Medical and Molecular Genetics IU School of Medicine Indianapolis IN USA

Publisher

Wiley

Subject

Genetics(clinical),Genetics

Reference16 articles.

1. Bobby Jones CSF2017 Homepage.www.bobbyjonescsf.org

2. Gastrointestinal medication burden among persons with the Ehlers‐Danlos syndromes

3. Dysautonomia International2019 Homepage.http://www.dysautonomiainternational.org/

4. The 2017 international classification of the Ehlers-Danlos syndromes

5. Pain Community 2021 Homepage The Pain Community.https://paincommunity.org/

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