Attitudes about the use of internet support groups and the impact among parents of children with Cornelia de Lange syndrome
Author:
Funder
Center for CdLS
Arcadia University
Publisher
Wiley
Subject
Genetics (clinical),Genetics
Reference27 articles.
1. Building treasures for rare disorders;Baas;Eur J Med Genet,2014
2. Behavioral phenotype of Cornelia de Lange syndrome;Berney;Arch Dis Child,1997
3. Social network sites: Definition, history, and scholarship;Boyd;JCMC,2008
4. Use and perceived credibility of medication information sources for patients with a rare illness: Differences by gender;Carpenter;J Health Commun,2011
5. Social media use in the United States: Implications for health communication;Chou;J Med Internet Res,2009
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1. Exploring the role of digital tools in rare disease management: An interview‐based study;Journal of Genetic Counseling;2024-05-13
2. Advancing the Clinical and Molecular Understanding of Cornelia de Lange Syndrome: A Multidisciplinary Pediatric Case Series and Review of the Literature;Journal of Clinical Medicine;2024-04-21
3. Cornelia De Lange Syndrome in the International Classification of Functioning, Disability and Health Perspetive: A Case Report;Indonesian Journal of Physical Medicine and Rehabilitation;2023-06-28
4. Ethical Issues With Patient–Provider Interactions in an Evolving Social Media Landscape;Pediatrics;2023-05-11
5. Developmental Support for Infants With Genetic Disorders;Pediatrics;2020-05-01
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