Concept-elicitation phase for the development of the pediatric patient-reported outcome version of the Common Terminology Criteria for Adverse Events

Author:

Weaver Meaghann S.12,Reeve Bryce B.34,Baker Justin N.1,Martens Christa E.3,McFatrich Molly3,Mowbray Catriona2,Palma Diana5,Sung Lillian67,Tomlinson Deborah6,Withycombe Janice89,Hinds Pamela1011

Affiliation:

1. Department of Oncology; St. Jude Children's Research Hospital; Memphis Tennessee

2. Department of Oncology; Children's National Health Systems; Washington DC

3. Lineberger Comprehensive Cancer Center; University of North Carolina; Chapel Hill North Carolina

4. Department of Health Policy and Management; Gillings School of Global Public Health; Chapel Hill North Carolina

5. Children's Center for Cancer and Blood Diseases; Children's Hospital Los Angeles; Los Angeles California

6. Child Health Evaluative Sciences; Hospital for Sick Children; Toronto Canada

7. Division of Hematology/Oncology; Hospital for Sick Children; Toronto Canada

8. Palmetto Health Children's Hospital; Columbia South Carolina

9. Nell Hodgson Woodruff School of Nursing; Emory University; Atlanta Georgia

10. Department of Nursing Research and Quality Outcomes; Children's National Health Systems; Washington DC

11. Department of Pediatrics; George Washington University; Washington DC

Publisher

Wiley

Subject

Cancer Research,Oncology

Reference29 articles.

1. Patient-reported outcomes in clinical trials of rare diseases;Basch;J Gen Intern Med,2014

2. Assessment of symptoms reported by 10- to 18-year-old cancer patients in Taiwan;Yeh;J Pain Symptom Manage,2009

3. Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance;US Department of Health and Human Services FDA Center for Drug Evaluation and Research, US Department of Health and Human Services FDA Center for Biologics Evaluation and Research, US Department of Health and Human Services FDA Center for Devices and Radiological Health;Health Qual Life Outcomes,2009

4. Advancing the science of symptom management;Dodd;J Adv Nurs,2001

5. Symptoms and distress in children with advanced cancer: prospective patient-reported outcomes from the PediQUEST study;Wolfe;J Clin Oncol,2015

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