Promotores' perspectives on the virtual adaptation of a hereditary breast cancer education program

Author:

Perez Fabian12,Hernandez Miriam3,Martinez Alejandra4,Castaneda Patricia3,Ponce Raquel3,Gonzalez Maria3,Martinez Cindia3,Perez Angelica2,Quino Juanita Elizabeth5,Robles Garibay Eric6,Zavala Valentina A.12,Huang Xiaosong12,Neuhausen Susan L.7,Ziv Elad8,Carvajal‐Carmona Luis9,Duron Ysabel10,Fejerman Laura12ORCID

Affiliation:

1. Department of Public Health Sciences University of California Davis Davis California USA

2. Comprehensive Cancer Center University of California Davis Davis California USA

3. Vision y Compromiso Los Angeles California USA

4. Promoters for Better Health Los Angeles California USA

5. Genome and Biomedical Facility University of California Davis Davis California USA

6. School of Medicine University of California Davis Davis California USA

7. Department of Population Sciences Beckman Research Institute of City of Hope Duarte California USA

8. Hellen Diller Comprehensive Cancer Center University of California San Francisco San Francisco California USA

9. Department of Biochemistry and Molecular Medicine University of California Davis Davis California USA

10. The Latino Cancer Institute San Jose California USA

Abstract

AbstractBreast cancer is the most common cancer in women in the United States (U.S.) and the leading cause of cancer related death among U.S. Hispanics/Latinas (H/Ls). H/Ls have lower rates of screening and longer time to follow up after an abnormal mammogram. We developed a comprehensive community health educator (promotores)‐led education and risk identification program for Spanish‐speaking H/Ls in California to increase mammography screening, genetic testing, and the understanding of the impact of family history on cancer risk. Due to COVID‐19, we adapted the program to a virtual platform. The experience of transforming the program to a virtual platform provided unique opportunities for collaboration between researchers, community partners, and participants. Promotores are major partners in community based participatory research and in the provision of health care services, but their voices are often excluded from scientific reports. This commentary is an effort to provide a platform for promotores to share their experiences and for the readers to understand their approach in bridging the gap between health care services and communities.

Funder

National Cancer Institute

Office of Statewide Health Planning and Development, State of California

Publisher

Wiley

Subject

Genetics (clinical)

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