Amyotrophic lateral sclerosis-specific quality of life-short form (ALSSQOL-SF): A brief, reliable, and valid version of the ALSSQOL-R

Author:

Felgoise Stephanie H.1,Feinberg Richard2,Stephens Helen E.3,Barkhaus Paul4,Boylan Kevin5,Caress James6,Clawson Lora L.7,Elman Lauren8,Goutman Stephen A.9ORCID,Mccluskey Leo8,Russell James10,Tiryaki Ezgi11,Weiss Michael12,Simmons Zachary3ORCID

Affiliation:

1. Department of Psychology; Philadelphia College of Osteopathic Medicine; Philadelphia Pennsylvania USA

2. National Board of Medical Examiners; Philadelphia Pennsylvania USA

3. Department of Neurology; Penn State Hershey Medical Center, Department of Neurology; EC 037, P.O. Box 859, Hershey Pennsylvania 17033 USA

4. Department of Neurology; Medical College of Wisconsin; Milwaukee Wisconsin USA

5. Department of Neurology; Mayo Clinic Jacksonville; Jacksonville Florida USA

6. Department of Neurology; Wake Forest University; Winston-Salem North Carolina USA

7. Department of Neurology; The Johns Hopkins University School of Medicine; Baltimore Maryland USA

8. Department of Neurology; University of Pennsylvania; Philadelphia Pennsylvania USA

9. Department of Neurology; University of Michigan; Ann Arbor Michigan USA

10. Department of Neurology; Lahey Clinic; Burlington Massachusetts USA

11. Department of Neurology; University of Minnesota; Minneapolis Minnesota USA

12. Department of Neurology; University of Washington; Seattle Washington USA

Funder

Paul and Harriett Campbell Fund for ALS Research

ALS Association Greater Philadelphia Chapter

Publisher

Wiley

Subject

Physiology (medical),Cellular and Molecular Neuroscience,Clinical Neurology,Physiology

Reference46 articles.

1. Quality of life and measures of quality of life in patients with neuromuscular disorders;Burns;Muscle Nerve,2012

2. Patient-perceived outcomes and quality of life in ALS;Simmons;Neurotherapeutics,2014

3. World Health Organization Division of Mental Health and Prevention of Substance Abuse http://www.who.int/mental_health/media/68.pdf 2016

4. Individual quality of life is not correlated with health related quality of life or physical function in patients with amyotrophic lateral sclerosis;Neudert;J Palliat Med,2004

5. Quality of life in ALS depends on factors other than strength and physical function;Simmons;Neurology,2000

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