National integration of mental health screening and treatment into specialized care for cystic fibrosis: What predicts success?

Author:

Quittner Alexandra L.1ORCID,Barker David2,Graziano Sonia3ORCID,Georgiopoulos Anna M.4ORCID,Muther Emily5ORCID,Verkleij Marieke6,Schechter Michael S.7,Tillman Laura8,Mueller Amy9,Lomas Paula10,Hempstead Sarah10,Smith Beth A.11

Affiliation:

1. Joe DiMaggio Cystic Fibrosis Pulmonary Medicine and Sleep Center Hollywood Florida USA

2. Psychiatry & Human Development, Bradley Hasbro Children's Research Center Brown University Providence Rhode Island USA

3. Department of Neurological Sciences, Unit of Clinical Psychology, Bambino Gesù Children's Hospital IRCCS Rome Italy

4. Department of Psychiatry Massachusetts General Hospital Boston Massachusetts USA

5. Department of Psychiatry & Pediatrics University of Colorado School of Medicine/Children's Hospital Colorado Aurora Colorado USA

6. Pediatric Psychology, Emma Children's Hospital, Child and Adolescent Psychiatry & Psychosocial Care Amsterdam UMC location University of Amsterdam Amsterdam The Netherlands

7. Department of Pediatrics Children's Hospital of Richmond at Virginia Commonwealth University Richmond Virginia USA

8. Community Member Ann Arbor Michigan USA

9. Department of Medicine Hartford Hospital Hartford Connecticut USA

10. Clinical Affairs Cystic Fibrosis Foundation Bethesda Maryland USA

11. Department of Psychiatry and Pediatrics University at Buffalo School of Medicine Buffalo New York USA

Abstract

AbstractObjectivesThe CF Foundation sponsored competitive awards for Mental Health Coordinators (MHCs) from 2016 to 2018 to implement the international guidelines for mental health screening and treatment in US CF centers. Longitudinal surveys evaluated success in implementing these guidelines using the Consolidated Framework for Implementation Research (CFIR).MethodsMHCs completed annual surveys assessing implementation from preparation/basic implementation (e.g., using recommended screeners) to full implementation/sustainability (e.g., providing evidence‐based treatments). Points were assigned to questions through consensus, with higher scores assigned to more complex tasks. Linear regression and mixed effects models were used to: (1) examine differences in centers and MHC characteristics, (2) identify predictors of success, (3) model the longitudinal trajectory of implementation scores.ResultsA total of 122 MHCs (88.4% responded): Cohort 1,N = 80; Cohort 2,N = 30; and Cohort 3,N = 12. No differences in center characteristics were found. Significant improvements in implementation were observed across centers over time. Years of experience on a CF team was the only significant predictor of success; those with 1–5 years or longer reported the highest implementation scores. Change over time was predicted by >5 years of experience.ConclusionsImplementation of the mental health guidelines was highly successful over time. Funding for MHCs with dedicated time was critical. Longitudinal modeling indicated that CF centers with diverse characteristics could implement them, supported by evidence from the CF Patient Registry showing nearly universal uptake of mental health screening in the United States. Years of experience predicted better implementation, suggesting that education and training of MHCs and retention of experienced providers are critical to success.

Publisher

Wiley

Subject

Pulmonary and Respiratory Medicine,Pediatrics, Perinatology and Child Health

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