Coping in times of disruption and deprivation—Experiences of family members during COVID‐19 patients' critical illness: A qualitative study

Author:

Berntzen Helene1ORCID,Lind Ranveig23,Alfheim Hanne45,Tøien Kirsti16ORCID

Affiliation:

1. Division of Emergencies and Critical Care, Department of Postoperative and Intensive Care Nursing Oslo University Hospital Oslo Norway

2. Department of Health and Care Sciences, Faculty of Health Sciences UiT The Arctic University of Norway Tromsø Norway

3. Intensive Care Unit University Hospital of North Norway Tromsø Norway

4. Faculty of Health VID Specialized University Oslo Norway

5. Department of Anesthesia and Intensive Care, Vestre Viken Hospital Trust Baerum Hospital Baerum Norway

6. Department of Research and Development, Division of Emergencies and Critical Care Oslo University Hospital Oslo Norway

Abstract

AbstractAimTo explore the experiences and needs of family members during the course of COVID‐19 critical illness from onset to rehabilitation.DesignAn exploratory qualitative study.MethodsTwelve family members of surviving critically ill COVID‐19 patients and restricted from visiting the patients, were interviewed digitally. Reflexive thematic analysis was used.ResultsThree themes were generated from the data; ‘Experiencing a double burden’, ‘Becoming an insignificant other’ and ‘Regaining significance’. Family members were often ill themselves, which represented an extra burden when the patient deteriorated. From admission, the family members became bystanders, deprived of most contact with the patients, as communication and information from the intensive care unit appeared unstructured and haphazard. However, when patients were discharged, great responsibility was placed on the family members.

Publisher

Wiley

Subject

General Nursing

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