Anticipatory Waivers of Consent for Pediatric Biobanking-Reference-Cited by-同舟云学术

Anticipatory Waivers of Consent for Pediatric Biobanking

Published:2019-03 Issue:2 Volume:41 Page:14-21
ISSN:2578-2355
Container-title:Ethics & Human Research
language:en
Short-container-title:Ethics & Human Research

Author:

Hartsock Jane A.¹,Schwartz Peter H.²,Waltz Amy C.³,Ott Mary A.⁴

Affiliation:

1. Faculty investigator with the Indiana University Center for Bioethics at the Indiana University School of Medicine and the director of clinical ethics for the Academic Health Center at Indiana University Health

2. Director of the Indiana University Center for Bioethics at the Indiana University School of Medicine and an associate professor of medicine at Indiana University School of Medicine

3. Associate director of the Indiana University Human Subjects Office and an adjunct professor at the Indiana University Robert H. McKinney School of Law

4. Pediatric ethicist at the Indiana University Center for Bioethics at the Indiana University School of Medicine and an associate professor of pediatrics in the Indiana University School of Medicine

Publisher

Wiley

Subject

Health(social science)

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/eahr.500008

Reference36 articles.

1. Characterizing Biobank Organizations in the U.S.: Results from a National Survey;Henderson G. E.;Genome Medicine,2013

2. Ibid.

3. Ibid.

4. Ibid.

5. U.S. Department of Health & Human Services Protection of Human Subjects 45 C.F.R. 46.401.

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1. Mothers’ Views on the Storage and Usage of Their Children’s Biological Material Under the Danish Biobanking Model: A Narrative Approach Using Epistemic Injustice;Value in Health;2023-09

2. Re-contact Following Withdrawal of Minors from Research;Canadian Journal of Bioethics;2022

3. Adolescent Assent and Reconsent for Biobanking: Recent Developments and Emerging Ethical Issues;Frontiers in Medicine;2021-07-09

4. Beyond Biobanking: Future Use of Specimens and Data from Pediatric Participants;The Journal of Pediatrics;2020-06