Big Health Data Research and Group Harm: The Scope of IRB Review
Author:
Affiliation:
1. Director at Sage Bionetworks
2. Director of Human Research Protections at Maimonides Medical Center
Publisher
Wiley
Subject
Health (social science)
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1002/eahr.500130
Reference21 articles.
1. All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent
2. New Tools for New Research in Psychiatry: A Scalable and Customizable Platform to Empower Data Driven Smartphone Research
3. Toward a National Framework for the Secondary Use of Health Data: An American Medical Informatics Association White Paper
4. The “All of Us” Research Program
5. Considerations for ethics review of big data health research: A scoping review
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