Using digital technologies to facilitate social inclusion during the COVID‐19 pandemic: Experiences of co‐resident and non‐co‐resident family carers of people with dementia from DETERMIND‐C19

Author:

Hicks Ben1ORCID,Gridley Kate2ORCID,Dixon Josie3ORCID,Baxter Kate2ORCID,Birks Yvonne2ORCID,Colclough Carmen4ORCID,Karim Anomita1,Perach Rotem4ORCID,Moseley Elen5,Russell Alice1,Sondh Harsharon K.5,Storey Bryony6,Tipping Eva1,Ardle Riona Mc7ORCID,Donaghy Paul7ORCID,Dangoor Margaret3,Miles Eleanor4ORCID,Robinson Louise7ORCID,Rusted Jennifer4ORCID,Waine Harriet5,Wheatley Katherine1,Banerjee Sube8ORCID,

Affiliation:

1. Brighton and Sussex Medical School University of Sussex Brighton UK

2. Social Policy Research Unit University of York York UK

3. Care Policy and Evaluation Centre London School of Economics and Political Science London UK

4. School of Psychology University of Sussex York UK

5. South London and Maudsley NHS Foundation Trust London UK

6. Gateshead Health NHS Foundation Trust Gateshead UK

7. Newcastle University Newcastle Upon Tyne UK

8. Faculty of Health University of Plymouth Plymouth UK

Abstract

AbstractBackgroundThe COVID‐19 pandemic triggered rapid and unprecedented changes in the use of digital technologies to support people's social inclusion. We examined whether and how co‐resident and non‐co‐resident family carers of people with dementia engaged with digital technologies during this period.MethodsThroughout November 2020‐February 2021, we interviewed 42 family carers of people with dementia from our DETERMIND‐C19 cohort. Preliminary analysis was conducted through Framework analysis, followed by an inductive thematic analysis.FindingsDigital technologies served as a Facilitator for social inclusion by enabling carers to counter the effects of the differing restrictions imposed on them so they could remain socially connected and form a sense of solidarity, access resources and information, engage in social and cultural activities and provide support and independence in their caring role. However, these experiences were not universal as carers discussed some Challenges for tech inclusion, which included preferences for face‐to‐face contact, lack of technological literacy and issues associated with the accessibility of the technology.ConclusionMany of the carers engaged with Information and Communication Technologies, and to a lesser extent Assistive Technologies, during the pandemic. Whilst carers experienced different challenges due to where they lived, broadly the use of these devices helped them realise important facets of social inclusion as well as facilitated the support they provided to the person with dementia. However, to reduce the ‘digital divide’ and support the social inclusion of all dementia carers, our findings suggest it is essential that services are attuned to their preferences, needs and technological abilities.

Funder

Economic and Social Research Council

National Institute for Health Research

UK Research and Innovation

Publisher

Wiley

Subject

Psychiatry and Mental health,Geriatrics and Gerontology

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