Landscape of genetic counseling in the Philippines

Author:

Abad Peter James12ORCID,Tumulak Ma‐Am Joy34ORCID,Guerbo Romer5,de Castro‐Hamoy Leniza34ORCID,Bautista Niecy Grace6,Nuique Ramonito7ORCID,Jacalan Frances Isabelle8,Talapian Gay Luz91011,Felipe‐Dimog Eva Belingon12ORCID,Lagarde John Benedict6ORCID,Plaga Starlene Joy13,Jover Edbert Jasper5,Morales Kristine Dawn14,Canoy Graciel Mae5,Laurino Mercy Y.415ORCID

Affiliation:

1. The University of Iowa College of Nursing Iowa City Iowa USA

2. College of Nursing University of the Philippines Manila Manila Philippines

3. Institute of Human Genetics, National Institute of Health University of the Philippines Manila Manila Philippines

4. Department of Pediatrics, College of Medicine University of the Philippines Manila Manila Philippines

5. Newborn Screening Center‐Mindanao Davao City Philippines

6. Sunshine Care Foundation for Neurological Care and Research, The Health Centrum Hospital Roxas City Philippines

7. Augusto P. Sarmiento Cancer Institute The Medical City Pasig Philippines

8. Department of Science and Technology‐Food and Nutrition Research Institute Taguig Philippines

9. Department of Obstetrics and Gynecology, St. Luke's Medical Center ‐ Quezon City Quezon City Philippines

10. Center for Advanced Reproductive Medicine and Infertility, St. Luke's Medical Center‐ Global City Taguig City Philippines

11. St. Luke's Medical Center ‐College of Medicine, William H. Quasha Memorial Quezon City Philippines

12. Nursing Department, Mountain Province State Polytechnic College Bontoc Mountain Province Philippines

13. Newborn Screening Center‐ Visayas West Visayas State University Medical Center Iloilo City Philippines

14. Philippine General Hospital ‐ University of the Philippines Manila Manila Philippines

15. Fred Hutchinson Cancer Center Seattle Washington USA

Abstract

AbstractIn this paper, we report on the professional development of genetic counselors in the Philippines as we discuss the status of genetic counseling training and research, along with the roles and scope of practice of genetic counselors. The development of a master's level training program for non‐physician genetic counselors in the Philippines initiated in 2011 was in response to the increasing demand for genetic counseling services. There are currently 18 locally trained genetic counselors who are practicing in various fields including newborn screening, pediatrics, cancer, prenatal and preconception, neurology, and research. Despite the success of the genetic counseling training program, various professional challenges hinder maximizing the impact of genetic counselors in the health system. The challenges discussed in this paper include the limited number of genetic counselors, the lack of government positions officially recognizing the ‘genetic counselor’ title, and the absence of a regulatory framework. These issues require thorough discussion with appropriate government agencies and collaboration with other healthcare professional organizations with the ultimate goal of ensuring quality genetic counseling services nationwide.

Publisher

Wiley

Subject

Genetics (clinical)

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