After genomic testing results: Parents’ long‐term views
Author:
Affiliation:
1. Department of Medical Genetics Faculty of Medicine University of British Columbia Vancouver BC Canada
2. BC Children's Hospital Research Institute Vancouver BC Canada
3. Women’s Health Research Institute Vancouver BC Canada
Publisher
Wiley
Subject
Genetics (clinical)
Link
https://onlinelibrary.wiley.com/doi/pdf/10.1002/jgc4.1454
Reference33 articles.
1. Rapid genome‐wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences
2. Illustrative case studies in the return of exome and genome sequencing results
3. “Before Facebook and before social media…we did not know anybody else that had this”: parent perspectives on internet and social media use during the pediatric clinical genetic testing process
4. Alone in a Crowd? Parents of Children with Rare Diseases’ Experiences of Navigating the Healthcare System
5. More primary care patients regret health decisions if they experienced decisional conflict in the consultation: a secondary analysis of a multicenter descriptive study
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