1. Batten Disease Family Association (BDFA)(2014)What is Batten Disease?www.bdfa‐uk.org.uk/what‐is‐batten‐disease/Accessed 28/01/20.
2. British Dietetic Association(2019)The Use of Liquidised Food with Enteral Feeding Tubes. Position Statement 14/11/19.Birmingham British Dietetic Association.https://www.bda.uk.com/resource/the‐use‐of‐blended‐diet‐with‐enteral‐feeding‐tubes.htmlAccessed 26/06/20.
3. Home-Based Care for Special Healthcare Needs
4. Parenting a Child With Complex Health Care Needs: A Stressful and Imposed “Clinical Career”