Caring for children with cancer evacuated from Ukraine: The patients’ perception

Author:

Bolognese Marcello1,Massimino Maura1ORCID,Cabibbe Daniele12,Zecca Marco3ORCID,Fornara Marta4,Armiraglio Mariangela1,Kyzima Roman5,Luksch Roberto1ORCID,Terenziani Monica1ORCID,Casanova Michela1,Spreafico Filippo1ORCID,Meazza Cristina1ORCID,Podda Marta1,Biassoni Veronica1,Schiavello Elisabetta1ORCID,Chiaravalli Stefano1,Puma Nadia1,Hovsepyan Shushan6ORCID,Bergamaschi Luca1ORCID,Gattuso Giovanna1ORCID,Nigro Olga1ORCID,Grampa Paolo1,Adduci Annarita1,Ferrari Andrea1ORCID,Clerici Carlo Alfredo17

Affiliation:

1. Pediatric Oncology Unit Fondazione IRCCS Istituto Nazionale dei Tumori Milan Italy

2. Lega Italiana per la Lotta Contro I Tumori, Monza e Brianza (LILT) Milano Italy

3. Pediatric Hematology/Oncology Fondazione IRCCS Policlinico San Matteo Pavia Italy

4. www.enartis.com Novara Italy

5. Western Ukrainian Specialized Children's Medical Centre Lviv Ukraine

6. Pediatric Cancer and Blood Disorders Center of Armenia Yerevan Armenia

7. Oncology and Hemato‐Oncology Department Milano Statal University Milan Italy

Abstract

AbstractBackground and aimsSince the beginning of the war in Ukraine on February 24, 2022, many pediatric oncology centers welcomed evacuated patients. To better understanding the needs of patients and families arriving at two Lombardy hospitals in the period March to November 2022, an anonymous questionnaire investigated the families’ backgrounds, feelings, and impressions about hospitality and care.MethodsTwenty questions investigated how patients had reached Italy, from whom they had received help (logistically/financially); the emotions regarding their status as war refugees; the knowledge, expectations, and opinions about Italy and Italians; the quality of medical care received and the relationships with the healthcare staff; lastly, suggestions to improve assistance.ResultsThe questionnaires were completed by 19/32 patients/parents in November 2022 in two different pediatric‐oncology centers. Most families had reached Italy (58%) and received medical care (95%) with the help of charities and the Italian Public Health Care System. A significant majority (69%) expressed satisfaction with the assistance provided. The Italian population demonstrated remarkable warmth, for 95% exhibiting friendliness and for 58% generosity. An improvement in their stay could be linked with the positive outcome of their children's cancer (15%), achieving complete family reunification (15%), the cessation of the conflict (10%), and the overcoming of language barriers (10%).ConclusionsProviding care for children from another country, not only grappling with the trauma of fleeing their homeland but also battling cancer, is an immense undertaking. It demands a diverse range of efforts and resources to ensure a positive and fulfilling outcome for this experience.

Publisher

Wiley

Reference18 articles.

1. Global trends. Forced displacement in 2022.UNHCR;2023. Accessed March 4 2024.https://www.unhcr.org/global‐trends‐report‐2022

2. Ukraine situation ‐ regional refugee response plan for the Ukraine situation ‐ final report 2023.Operational Data Portal;2024. Accessed March 4 2024.https://data.unhcr.org/en/documents/details/106833

3. A view on the problem of providing oncological aid during the war in Ukraine;Gordiichuk P;Contemp Oncol (Pozn),2022

4. Ukraine situation Flash Update #55.Operational Data Portal;2023. Accessed March 4 2024.https://data.unhcr.org/en/documents/details/103483

5. CharalambousA PyleD SullivanR CouespelN VenegoniN LawlerN.Cancer services disruptions during the war in Ukraine. Results from a joint multidisciplinary survey.European Cancer Organisation;2022.

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