1. Department of Pediatric Pulmonology Armand Trousseau University Hospital Paris France
2. I‐Motion Hôpital Armand Trousseau Paris France
3. ESEAN‐APF Health Center for Children and Adolescents Nantes France
4. Department of Pediatric Fondation Ildys Brest France
5. Pediatric Intensive Care Unit Department Centre Hospitalier Universitaire de Lille Lille France
6. Department of Pediatric Pulmonology and Allergology Children's Hospital Toulouse France
7. Department of Pediatric Pulmonology and Allergology, Reference Center for Cystic Fibrosis Hôpital Mère Enfant Bron France
8. U1028, CNRL Lyon 1 University Lyon France
9. Service de Rééducation Pédiatrique Infantile “L'Escale”, Hôpital Mère Enfant Hospices Civils de Lyon Lyon France
10. Neuromyogen Institute, CNRS UMR 5310—INSERM U1219 Lyon University Lyon France
11. Department of Pediatric Neurology and ICU, AP‐HP Université Paris Saclay Hôpital Raymond Poincaré Garches France
12. Centre de Référence des Maladies Neuromusculaires Garches‐Necker‐Mondor‐Hendaye (GNMH), Centre Nord‐ Est‐ Ile de France Réseau national des maladies neuromusculaires, FILNEMUS France
13. European Reference Center Network (Euro‐NMD ERN)
14. URC APHP Paris‐Saclay 4 Institut de Myologie Paris 5 APHP Raymond Poincaré Hospital Garche France
15. Sorbonne Université Centre de Recherche Saint‐Antoine (CRSA) Paris France
16. Department of Paediatrics, MDUK Oxford Neuromuscular Center University of Oxford Oxford UK
17. Division of Child Neurology Reference Center for Neuromuscular Disease, Department of Pediatrics, Centre Hospitalier Universitaire de Liège University Hospital Liège & University Liège Belgium
18. UMRS1158 Neurophysiologie Respiratoire Expérimentale et Clinique, INSERM Sorbonne Université Paris France
19. European Reference Network—Lung (ERN‐Lung)