Routine management, healthcare resource use and patient and carer‐reported outcomes of patients with transfusion‐dependent β‐thalassaemia in the United Kingdom: A mixed methods observational study-Reference-Cited by-同舟云学术

Routine management, healthcare resource use and patient and carer‐reported outcomes of patients with transfusion‐dependent β‐thalassaemia in the United Kingdom: A mixed methods observational study

Published:2021-09-08 Issue:4 Volume:2 Page:738-749
ISSN:2688-6146
Container-title:eJHaem
language:en
Short-container-title:eJHaem

Author:

Shah Farrukh¹,Telfer Paul²,Velangi Mark³,Pancham Shivan⁴,Wynn Robert⁵,Pollard Sally⁶,Chalmers Elizabeth⁷,Kell Jonathan⁸,Carter Angela M.⁹^ORCID,Hickey Joe⁹,Paramore Clark¹⁰,Jobanputra Minesh¹¹,Ryan Kate¹²

Affiliation:

1. Whittington Hospital London UK

2. Centre for Genomics and Child Health Blizard Institute Queen Mary University of London London UK

3. Birmingham Children's Hospital Birmingham UK

4. Birmingham City Hospital Birmingham UK

5. Royal Manchester Children's Hospital Manchester UK

6. Bradford Royal Infirmary Bradford UK

7. Royal Hospital for Children Glasgow UK

8. University Hospital of Wales Cardiff UK

9. OPEN Health Marlow UK

10. bluebird bio Cambridge Massachusetts USA

11. bluebird bio UK Basingstoke UK

12. Manchester Royal Infirmary Manchester UK

Funder

bluebird bio

Publisher

Wiley

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/jha2.282

Reference44 articles.

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2. Cross-Talk between Available Guidelines for the Management of Patients with Beta-Thalassemia Major

3. UK Thalassaemia SocietyStandards for the clinical care of children and adults with thalassaemia in the UK. 3rd Edition. [Internet]. 2016 (accessed 10 Aug 2021).https://ukts.org/3d‐flip‐book/standards/https://ukts.org/3d‐flip‐book/standards/

4. Quality of life in thalassemia: A comparison of SF-36 results from the thalassemia longitudinal cohort to reported literature and the US norms

5. The impact of thalassemia on Southeast Asian and Asian Indian families in the United States: A qualitative study;Liem RI;Ethn Dis,2011

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