Psychosocial care for cancer survivors: A global review of national cancer control plans

Author:

Mullen Louise1ORCID,Signorelli Christina23,Nekhlyudov Larissa4,Jacobsen Paul B.5,Gitonga Isaiah67,Estapé Tania8ORCID,Lim Høeg Beverley9ORCID,Miles Anne10ORCID,Sade Cristina11,Mazariego Carolyn12,Degi Csaba L.13ORCID,Howard Fuchsia14,Manne Sharon15ORCID,Travado Luzia16ORCID,Jefford Michael171819,

Affiliation:

1. National Cancer Control Programme Health Services Executive. Kings Inns House Dublin Ireland

2. Discipline of Paediatrics & Child Health School of Clinical Medicine UNSW Medicine & Health Randwick Clinical Campus UNSW Sydney Randwick New South Wales Australia

3. Kids Cancer Centre Sydney Children's Hospital Randwick New South Wales Australia

4. Department of Medicine Brigham and Women's Hospital Harvard Medical School Boston Massachusetts USA

5. Department of Psychology University of South Florida Tampa Florida USA

6. Department of Psychology Maynooth University Dublin Ireland

7. Ikuze Africa Nairobi Kenya

8. Psychosocial Oncology Department FEFOC Foundation Barcelona Spain

9. Psychological Aspects of Cancer Danish Cancer Society Research Center Copenhagen Denmark

10. Department of Psychological Sciences Birkbeck University of London London UK

11. Psychosocial Oncology Department Instituto Nacional del Cancer Santiago Chile

12. Faculty of Medicine and Health School of Population Health UNSW Sydney Randwick New South Wales Australia

13. Faculty of Sociology and Social Work Babeș‐Bolyai University Cluj‐Napoca Romania

14. School of Nursing University of British Columbia Vancouver British Columbia Canada

15. Department of Medicine Robert Wood Johnson Medical School Rutgers Cancer Institute of New Jersey New Brunswick New Jersey USA

16. Champalimaud Clinical and Research Center Champalimaud Foundation Lisbon Portugal

17. Department of Health Services Research Peter MacCallum Cancer Centre Melbourne Victoria Australia

18. Australian Cancer Survivorship Centre Peter MacCallum Cancer Centre Melbourne Victoria Australia

19. Sir Peter MacCallum Department of Oncology University of Melbourne Melbourne Victoria Australia

Abstract

AbstractObjectiveNational Cancer Control Plans (NCCPs) are high‐level policy documents that prioritise actions to be taken to improve cancer control activities. As the number of cancer survivors grows globally, there is an urgent need to assess whether and how psychosocial care across the cancer care continuum is included in NCCPs. This review aimed to ascertain the extent to which NCCPs referenced psycho‐oncology care for cancer survivors in the post‐treatment phase.MethodsNCCPs were obtained from the International Cancer Control Partnership (ICCP) portal (in November 2021) and reviewed in two phases. In Phase 1, all available NCCPs were screened to determine whether they mentioned psycho‐oncology or survivorship. In Phase 2, reviewers extracted data from the NCCPs identified in Phase 1 on the degree that each plan articulated objectives/goals to improve psychosocial care in the post‐treatment survivorship phase.ResultsWe screened 237 NCCPs. Of these, initial potential reference to psycho‐oncology and survivorship content were identified in 97 plans (41%). In Phase 1, 57/97 (59%) had reference to psycho‐oncology or survivorship content within defined criteria. In Phase 2, 27/97 (28%) had little mention of psycho‐oncology specifically in survivorship, 47/97 (48%) had some (general or brief) mention, and the remaining 23/97 (24%) had substantial content/specific sections and clearly articulated goals and/or objectives. Common goals for improving psychosocial care in the post‐treatment period included building capacity of healthcare professionals, implementing rehabilitation models, and increasing the utilisation of community services.ConclusionsMost NCCPs did not reference psycho‐oncology and only one‐quarter contained clear objectives specifically in the post‐treatment survivorship phase.

Publisher

Wiley

Subject

Psychiatry and Mental health,Oncology,Experimental and Cognitive Psychology

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