The experiences of adolescent siblings of children with rare genetic conditions: “It's made me who I am”-Reference-Cited by-同舟云学术

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The experiences of adolescent siblings of children with rare genetic conditions: “It's made me who I am”

Published:2022-09-19 Issue:1 Volume:32 Page:224-234
ISSN:1059-7700
Container-title:Journal of Genetic Counseling
language:en
Short-container-title:Journal of Genetic Counseling

Author:

Heaton Julia¹,Wainstein Tasha¹,Elliott Alison M.¹²³,Austin Jehannine¹⁴^ORCID, ,

Affiliation:

1. Department of Medical Genetics University of British Columbia Vancouver British Columbia Canada

2. BC Children's Hospital Research Institute Vancouver British Columbia Canada

3. Women's Health Research Institute Vancouver British Columbia Canada

4. Department of Psychiatry University of British Columbia Vancouver British Columbia Canada

Publisher

Wiley

Subject

Genetics (clinical)

Link

https://onlinelibrary.wiley.com/doi/pdf/10.1002/jgc4.1636

Reference37 articles.

1. A developmental social psychology of identity: understanding the person-in-context

2. Sibling Ill Health and Children's Educational Outcomes

3. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales

4. Paediatric life-limiting conditions: Coping and adjustment in siblings

Cited by 2 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Balancing on life's ladder: A meta‐ethnography of the existential experiences of siblings of children with complex care needs;Journal of Advanced Nursing;2023-12-07

2. Living with a rare disease - experiences and needs in pediatric patients and their parents;Orphanet Journal of Rare Diseases;2023-08-11

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